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Please help me raise money for surgery

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Hi my name is Lin I am 43 yers old a mum, a careworker and have lived with Endomitriosis for most of my adulthood. I was diagnosed with stage 4 Endomitriosis in October 2019 after years of unexplained pelvic pain, weightloss, anaemia, excessive bloating, constipation inspite of eating a diet full of fibre and well balanced. An MRI and hysterescopy showed that I have deep infiltrated Endomitriosis with dense adhesions between the left uterine wall and pelvic side wall snd left ovary. I also have adhesions abdominally and mild hydrosalpinx. My left ovary is adhered to the abnominal anterior wall and that is just past of my diagnosis which explains my bowel symptoms which for years mistaken for IBS or poor diet. According to NHS guidelines my surgery is classed as elective surgery despite endomitriosis being classed as one of tge most top 20 painful conditions by the NHS. Left untreated endomitriosis on the bowel can cause loss of bowel function leading to bowwl resection and one needing an ilieostommy. It can also cause loss of kidney function. I have been on a surgical waiting list with a wonderful team at St Mary's Women's and Children's Hospital in Manchester since October 2020. But due to Covid I am no where near getting surgery on the NHS. In December 2018 i had to leave a great job teaching preschool because i could not physically do it due to the pain. I have since had 2 other jobs. I am now a year and half into a new job working as a community support worker with adult social services I can only commit to working 16 hours a week which is 2 nights a week due to all the pain and discomfort. My pain medications also cause dizziness so on days when I am working just grit my teeth. I am at the end of my tether. I love my job working woth people in the community and would love to do more hours. I have a 9 year old son who has missed on alot of things due to my ill health my days off are spend trying to recover so that I am string enough for the next shift. I am an education graduate i have do much to offer but those even in my current role or in and education related field but currently I can not physically commit to a job that is more than 16 hours a week.

I also suffered period pain that left me unable to work for a day or two some months as i would be violently sick. From the summer of 2017 I have lived in constant pain in my pelvis and abdnomen sometimes this pain radiates down my left butt and leg due to nerve impingement from all the pressure in my pelvic area. In July 2020 I was diagnosed with suspected adenomysios which means I have a big uterus due to a severe inflammation and that my tussie similar tinthe uterine wall is growing outside the uterus adding pressure to my pelvic area, puts extra pressure on my hip joints except the nerve around these areas. During this time it was also confirmed that i have 2 large uterine fibroids cysts in my ovaries and a nodule growing in my rectum.

The plan of action is to have a total hysterectomy and excision surgery for all the endomitriosis on my bowels which means a multidisciplinary team of doctors working togather during surgery, a colorectal surgeon, genarsl surgeon and a gyneacologist. Because of how complex my condition is there are only a handful of teans in the UK who are trained a d experienced enough to successfully carry out this surgery. I have been on s surgical waiting list since March 2020. I have put so much of my life on hold but mostly I have mo wuality of life and neither have my family who have been very supportive. Endomitriosis affects 1 in 10 women but there are only a handful Gyneacologists that are skilled enough to fully diagnose and treat this level of disease hence I am pleading for help so that i can pick the right team of doctors to perform this surgery and get my quality of life back. I am a qualified early years teacher but i had to pack that in due to the physical demands. Thank you.

Organizer

Linly Litta-Clayton
Organizer
England

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