#LiamStrong

Liam Greyson Bordeaux was born February 3, 2020. He was born healthy & beautiful. We were sent home on the 4th, everything was looking good. We had no problems at home until the night of February 14th Wednesday night. I noticed liams breathing was labored. He would bob his head with every breath, so I unzipped his sleeper to see he was having chest retractions. He also started eating less & less. I quickly called his dr office & thank god they have a on call Dr at night that answers calls. Dr. Ludlow told me to take Liam to the hospital. It started at Brunswick novant hospital where we discovered his oxygen was dangerously low & he was struggling to breathe (still to this day all I think about is if I would’ve shrugged it off as nothing I could’ve woken up to a dead baby.) Brunswick also did a chest scan & said he had bronchiolitis. They said Liam had to be air lifted to new Hanover because they weren’t equipped to take care of a 2 week old struggling to breathe. About two hours later new Hanover came to get my baby on the helicopter. We drove to Betty H. Cameron women & children’s hospital to meet Liam in the PICU (pediatric intensive care unit.) his oxygen continued to drop at random times & he still struggled to breathe. They ran more tests & found out that Liam didn’t technically have bronchiolitis, his tests for flu, rsv, & so many more virus’s came back negative. They knew it had to be something wrong with his heart. We stayed in Wilmington from February 20th-22nd until they found out that Liam was diagnosed with TAPVR (total anomalous pulmonary venous return) a rare congenital heart defect that affects only 1 in 8,000 babies. Most aren’t diagnosed until 4-5 months because it’s something you have to really look for & know what you’re looking for when doing an echo of the heart. TAPVR is a condition where the 4 veins in the heart do not connect normally to the left side of the heart. Instead the four pulmonary veins drain abnormally to the right atrium (right upper chamber) by way of an abnormal (anomalous) connection (copied from google). Except for Liam it is switched around the left side is getting all the blood, while the right side isn’t. So pretty much in short his heart isn’t filtering or pumping his blood like it should be which is causing him to struggle to breathe & the reason his oxygen has been dropping so dangerously low. He’s been on oxygen ever since we arrived to Brunswick hospital. After we found out he had TAPVR we had to be transferred to Levine’s children hospital in Charlotte, NC. because now that we had a diagnosis new Hanover wasn’t equipped to handle open heart surgery. So on to the 3rd hospital in less than a week. We arrived at Levine children’s hospital on February 23rd at 1:00 am. He rode in the ambulance while we drove & met them there. Since being here in Charlotte we also found out that our sweet boy has PFO (patent foramen ovale) a hole in his heart that didn’t close completely like it was supposed to. They also informed me that this hole in his heart is what has kept my sweet boy alive for these two weeks otherwise Liam would’ve already gained his wings. He also has a heart murmur. So now we are currently waiting for tests to be ran & the Drs are coming up with a plan. Liam will be having open heart surgery sometime in the next few days. He is such a strong little fighter already & we are blessed to still have him here with us today. He is 3 weeks old today (February 24th) & I couldn’t imagine life without him. This whole experience has been so hard on my husband & I. As we had to leave behind our 2 year old boy Landen to be with Liam during this hard time. We miss Landen so so so much. Everyday that passes by just gets harder on us. Liam will be in the hospital after his surgery for a few weeks. My husband has had to take off work for a while as we only have 1 car to get around. So this has been even harder on my family than you could imagine. We’ve had to travel 3 1/2 hours away from home to get Liam the help he needs. We are humbly asking for donations for food, gas, bills, future dr appointments & anything else that might pop up along the way of this journey. Thank you so much for taking the time to read liams story & remember to stay #liamstrong. My little family & my heart warrior can’t thank you enough. God bless.

Please excuse any typos that I have made. 


I will be posting updates on here & on my Facebook if you would like to keep up. We are still waiting on a surgery date.