Curtis' Fight against ALS
Donation protected
UPDATE BELOW: June 23rd, 2022
In March 2022, Curtis was diagnosed with Motor Neurone Disease (MND). Motor neurone disease, also known as amyotrophic lateral sclerosis (ALS) / (Lou Gehrid's Disease)
In March 2022, Curtis was diagnosed with Motor Neurone Disease (MND). Motor neurone disease, also known as amyotrophic lateral sclerosis (ALS) / (Lou Gehrid's Disease)
This ruthless and cruel disease gradually takes away all muscle function. It is a terminal condition and while it affects each person differently, MND often has a high rate of progression and can quickly lead to a requirement for assistance with day-to-day needs such as movement, transportation and communication.
There is no known cause and, devastatingly, no known cure.
Curtis is only 39 years old; he's selfless, caring, hilarious and witty. He's been there for so many people in his life and now it is time to return the favour to this beautiful human.
During these last few months, before and after confirmed diagnosis, it has been a physical and emotional roller coaster for Curtis, and close friends as we all feel so helpless. Every day brings a new challenge.
We can't stop this disease from taking course, but we can alleviate the financial burden of living with it. Please help us raise some much-needed funds for Curtis, so he can focus on living his life to the fullest.
June 23rd, 2022 UPDATE:
I wanted to come on here to share some updates on Curtis' progress.
He has been going regularly to the ALS clinic and meeting some people that are guiding him as best they can.
It's been a hard week though, Curtis has finally been offered a treatment to potentially slow down his steady progress however was told that OHIP does not cover this medication. I'm taking this week to do some research and reach out to different groups to see if I can figure out how they can be covered as the medication is extremely expensive and causing unnecessary stress. If anyone has any recommendations or solutions PLS reach out!
I think anything that can potentially help or at least be documented for future diagnosis' should be top priority in our current world. That being said, we will start to distribute these generous funds to Curt now to help him get some much needed medication until we figure out the next steps.
I wanted to sincerely thank everyone for their kindness and generosity during these last two months, and the wonderful turn out for the Curt Coulis Cup Golf Tournament.
This has been a daily reminder to live life in the moment. Thank you all.
June 23rd, 2022 UPDATE:
I wanted to come on here to share some updates on Curtis' progress.
He has been going regularly to the ALS clinic and meeting some people that are guiding him as best they can.
It's been a hard week though, Curtis has finally been offered a treatment to potentially slow down his steady progress however was told that OHIP does not cover this medication. I'm taking this week to do some research and reach out to different groups to see if I can figure out how they can be covered as the medication is extremely expensive and causing unnecessary stress. If anyone has any recommendations or solutions PLS reach out!
I think anything that can potentially help or at least be documented for future diagnosis' should be top priority in our current world. That being said, we will start to distribute these generous funds to Curt now to help him get some much needed medication until we figure out the next steps.
I wanted to sincerely thank everyone for their kindness and generosity during these last two months, and the wonderful turn out for the Curt Coulis Cup Golf Tournament.
This has been a daily reminder to live life in the moment. Thank you all.
Organizer
Lindsay Watson
Organizer
Sarsfield, ON