The world has been blessed for 13 years with her strength and determination to finding a cure to Spinal Muscular Atrophy. This disease affects 1 out of every 6000 births worldwide.
At the age of 2, Sarah unfortunately was diagnosed with the progressive form of SMA type III. Thanks to all the generous donations made to SMA foundation the research has rapidly progressed. Cure SMA is committed to supporting the most promising SMA research, with over $62 million funded in our 30-year history.
Each year, Cure SMA issues requests for proposals in three major research areas:
Basic research, to investigate the causes and biology of SMA, revealing new and more effective ways of making drugs.
Drug discovery, to convert these basic research ideas into new drug candidates.
Clinical care, to improve the quality of life for SMA patients today.
2003-2006: Cure SMA made over $500,000 in seed grants to fund the therapeutic approach that led to Spinraza. On December 23, 2016, after 10 years of research and development, the FDA approved Spinraza for SMA, making it the first-ever approved therapy.
Let’s do this together! 15th of September 2017 - Bandits’ Grill and Bar Park City Utah would hold a charitable dinner event with all donations going to cure SMA (free bbq buffet, 5pm - 8pm.)
All the profits from the restaurant will be donated to the cause cure SMA on that day. 11am - 9pm. The next milestone to reach is a breakthrough gene therapy that will cure young kids. Stop the progression of the disease and potentially reverse some of the conditions for older people.
Please join Sarah, her family, friends, and medical team on September 15th at Bandits Grill in Park City to raise money to cure this disease once and for all.