Thank you from the bottom of my heart for clicking into this link.
At the urging of friends I created this go fund me page to help my daughter Priya who in August 2017 contracted lyme disease.
Over the last 20 months our healthcare system has failed Priya repeatedly,countless doctors visits and trips to the ER and we are no further forward and it is truly heartbreaking to see my once bubbly , outgoing, confident , bright daughter turn into an anxious , withdrawn, exhausted child riddled with pain and neurological symptoms similar to those with Parkinson's!
Where did it begin .....
In August 2017 Priya thought she had a scab behind her knee and kept trying to pull it off for several days ,unknown to her it was a deer tick that had buried itself under her skin and had become so engorged . When she showed this “ scab”to me I rushed her to urgent care where we had our first encounter of being let down.The doctor removed the tick and then threw it in the trash and Priya was given five days of antibiotics. Mistake 1...the tick should have been sent away for testing. Mistake 2....the doctor should have given Priya 6 weeks of this particular antibiotics and had this happened I would not be writing this sad story now.
What happened .....
In October 2017 six weeks after the tick was removed my daughter was rushed by ambulance to hospital with excruciating pains in her head followed by vomiting and sensitivity to light. I insisted they do a spinal tap to test for meningitis. This was dismissed by the doctor several times however seeing that I was not going to give up as a mother, they proceeded to do a very painful spinal tap on Priya and the results showed that yes in fact she did have meningitis. I explained that I felt very strongly that it was Lyme bone meningitis as something had clearly crossed over the blood brain barrier and now infected her brain and this was too much of a coincidence but the infectious disease doctors and various other doctors dismissed us and Priya was in ICU for five days and for a total of 10 days in the hospital. While in hospital I insisted that my poor baby girl be tested for Lyme disease and once again begrudgingly they did so however according to the CDC she was not positive for Lyme disease even though it quite clearly showed that there was Lyme bacteria present in her blood but not enough to be officially diagnosed with Lyme disease!!!She was tested again some months later only to be told the same thing but recently I was told that in fact I was correct... but too little too late now!
What is Lyme disease ?
Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected blacklegged ticks. An infected tick can transmit the spirochete to the humans . Typical Symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system which is what we are now sadly dealing with .
The tick attached itself to Priyas skin for four days and had become engorged, therefor it had been there long enough to transmit the LD spirochete.
Coinfections can also be transmitted which sadly for Priya they did causing her now to be diagnosed with Pots Syndrome which causes her to have an irregular heart rhythm and passing out to be brief,, Babesia which is an Apicomplexan parasite that infects red blood cells, transmitted by ticks. Epstein bar virus which if you end up with Lyme disease and it becomes chronic, is a state of immune dysfunction, then you can have reactivation of Epstein-Barr virus and other viruses in your system, and these viruses can cause many of the same symptoms and disease ! Bartonella which are intracellular parasites that generally show preference for red blood cells, macrophages, and endothelial cells.
A leading Lyme Specialist has described the illness as "the aids of our time" as it completely disables whatever immune system you have and the longer this is left, the more damage it will cause!!
Where are we now ?
Sadly as it was not diagnosed in time we are now dealing with late stage chronic Lyme disease, it has spread throughout the body and into the nervous system. Watching Priya having to work twice as hard if not more just to get through a school day , never complaining. Watching Priya suffer an invisible illness where others do not see her suffering and cannot truly understand . Seeing Priya in constant discomfort, where at times her quality of life is so poor she stays in bed for hours at a time .
The symptoms she has ..Black outs•Fainting•Respiratory Issues• Brain Fog• Extreme Fatigue•Bladder pain•Irregular Heart rate•Involuntary Muscle Movements•Swollen eyes•Spasms•Tremors•Migraines•Tingling Sensations•Vision Loss• Neck and Back stiffness •Sensitive to sound and Motion•Pain In ligaments and Muscles•Slurred speech•Brain constantly under attack•The Brain is under attack, infested with millions of spirochete spiraling their way into every crevice of the tissues, cells and muscles •Loss of sensory and motor nerve function and so much more ...
Sadly Lyme disease is not covered by health insurance. The financial burden that comes with Lyme disease treatment is significant and as a single mother trying to pay basic household bills while trying to pay for all the medical expenses is becoming impossible .
It is difficult to ask for financial help but as Priya’s mother, I realized I must forgo my pride and seek the help that she needs. I am hoping through this Go Fund Me Page I can raise enough funds to continue getting Priya the care that she deserves with the specialists that she needs to be seeing and am hoping to get further specialized treatment which at this time is completely out of my financial ability. I am also hoping to purchase an AmpCoil. An AmpCoil is a pulsed- electromagnetic-field (PEMF) device that helps manages Lyme and its many related infections. Currently AmpCoils cost between $8000 and $10,000 dollars and as I have reached my financial limits due to our endless litany of appointments and treatments, I am seeking financial help to obtain the AmpCoil that I know, based on extensive research, will help Priya.
In simple terms, an AmpCoil introduces vibrations that make change at the cellular level. AmpCoil’s can restore and rejuvenate your body. I do not want my daughter taking Opioids to deal with the painfulness of this disease. I think we can all see the devastation caused by Opioid use in our society. I do not want Priya becoming addicted to Opioids as a way of dealing with any of her pain. . PEMF’s not only help with the pain but they also restore the body thereby addressing the underlying causes of the disease.
As a mother, it is devastating to watch one’s child suffer and become sicker on a daily basis, without any ability to stop the disease process.
Thank you for reading and for your support, friendship and love. Please consider donating towards Priya’s medical treatment and giving her the chance to live life as it should be lived: thriving and healthy. I would appreciate you sharing Priyas story with others and encourage them to donate if they feel called, or to simply send prayers and healing thoughts for her long challenging journey of treatment.
At the urging of friends I created this go fund me page to help my daughter Priya who in August 2017 contracted lyme disease.
Over the last 20 months our healthcare system has failed Priya repeatedly,countless doctors visits and trips to the ER and we are no further forward and it is truly heartbreaking to see my once bubbly , outgoing, confident , bright daughter turn into an anxious , withdrawn, exhausted child riddled with pain and neurological symptoms similar to those with Parkinson's!
Where did it begin .....
In August 2017 Priya thought she had a scab behind her knee and kept trying to pull it off for several days ,unknown to her it was a deer tick that had buried itself under her skin and had become so engorged . When she showed this “ scab”to me I rushed her to urgent care where we had our first encounter of being let down.The doctor removed the tick and then threw it in the trash and Priya was given five days of antibiotics. Mistake 1...the tick should have been sent away for testing. Mistake 2....the doctor should have given Priya 6 weeks of this particular antibiotics and had this happened I would not be writing this sad story now.
What happened .....
In October 2017 six weeks after the tick was removed my daughter was rushed by ambulance to hospital with excruciating pains in her head followed by vomiting and sensitivity to light. I insisted they do a spinal tap to test for meningitis. This was dismissed by the doctor several times however seeing that I was not going to give up as a mother, they proceeded to do a very painful spinal tap on Priya and the results showed that yes in fact she did have meningitis. I explained that I felt very strongly that it was Lyme bone meningitis as something had clearly crossed over the blood brain barrier and now infected her brain and this was too much of a coincidence but the infectious disease doctors and various other doctors dismissed us and Priya was in ICU for five days and for a total of 10 days in the hospital. While in hospital I insisted that my poor baby girl be tested for Lyme disease and once again begrudgingly they did so however according to the CDC she was not positive for Lyme disease even though it quite clearly showed that there was Lyme bacteria present in her blood but not enough to be officially diagnosed with Lyme disease!!!She was tested again some months later only to be told the same thing but recently I was told that in fact I was correct... but too little too late now!
What is Lyme disease ?
Lyme disease is caused by the bacterium Borrelia burgdorferi and is transmitted to humans through the bite of infected blacklegged ticks. An infected tick can transmit the spirochete to the humans . Typical Symptoms include fever, headache, fatigue, and a characteristic skin rash called erythema migrans. If left untreated, infection can spread to joints, the heart, and the nervous system which is what we are now sadly dealing with .
The tick attached itself to Priyas skin for four days and had become engorged, therefor it had been there long enough to transmit the LD spirochete.
Coinfections can also be transmitted which sadly for Priya they did causing her now to be diagnosed with Pots Syndrome which causes her to have an irregular heart rhythm and passing out to be brief,, Babesia which is an Apicomplexan parasite that infects red blood cells, transmitted by ticks. Epstein bar virus which if you end up with Lyme disease and it becomes chronic, is a state of immune dysfunction, then you can have reactivation of Epstein-Barr virus and other viruses in your system, and these viruses can cause many of the same symptoms and disease ! Bartonella which are intracellular parasites that generally show preference for red blood cells, macrophages, and endothelial cells.
A leading Lyme Specialist has described the illness as "the aids of our time" as it completely disables whatever immune system you have and the longer this is left, the more damage it will cause!!
Where are we now ?
Sadly as it was not diagnosed in time we are now dealing with late stage chronic Lyme disease, it has spread throughout the body and into the nervous system. Watching Priya having to work twice as hard if not more just to get through a school day , never complaining. Watching Priya suffer an invisible illness where others do not see her suffering and cannot truly understand . Seeing Priya in constant discomfort, where at times her quality of life is so poor she stays in bed for hours at a time .
The symptoms she has ..Black outs•Fainting•Respiratory Issues• Brain Fog• Extreme Fatigue•Bladder pain•Irregular Heart rate•Involuntary Muscle Movements•Swollen eyes•Spasms•Tremors•Migraines•Tingling Sensations•Vision Loss• Neck and Back stiffness •Sensitive to sound and Motion•Pain In ligaments and Muscles•Slurred speech•Brain constantly under attack•The Brain is under attack, infested with millions of spirochete spiraling their way into every crevice of the tissues, cells and muscles •Loss of sensory and motor nerve function and so much more ...
Sadly Lyme disease is not covered by health insurance. The financial burden that comes with Lyme disease treatment is significant and as a single mother trying to pay basic household bills while trying to pay for all the medical expenses is becoming impossible .
It is difficult to ask for financial help but as Priya’s mother, I realized I must forgo my pride and seek the help that she needs. I am hoping through this Go Fund Me Page I can raise enough funds to continue getting Priya the care that she deserves with the specialists that she needs to be seeing and am hoping to get further specialized treatment which at this time is completely out of my financial ability. I am also hoping to purchase an AmpCoil. An AmpCoil is a pulsed- electromagnetic-field (PEMF) device that helps manages Lyme and its many related infections. Currently AmpCoils cost between $8000 and $10,000 dollars and as I have reached my financial limits due to our endless litany of appointments and treatments, I am seeking financial help to obtain the AmpCoil that I know, based on extensive research, will help Priya.
In simple terms, an AmpCoil introduces vibrations that make change at the cellular level. AmpCoil’s can restore and rejuvenate your body. I do not want my daughter taking Opioids to deal with the painfulness of this disease. I think we can all see the devastation caused by Opioid use in our society. I do not want Priya becoming addicted to Opioids as a way of dealing with any of her pain. . PEMF’s not only help with the pain but they also restore the body thereby addressing the underlying causes of the disease.
As a mother, it is devastating to watch one’s child suffer and become sicker on a daily basis, without any ability to stop the disease process.
Thank you for reading and for your support, friendship and love. Please consider donating towards Priya’s medical treatment and giving her the chance to live life as it should be lived: thriving and healthy. I would appreciate you sharing Priyas story with others and encourage them to donate if they feel called, or to simply send prayers and healing thoughts for her long challenging journey of treatment.