Kamden was born a healthy happy baby.  His grandpa always said that he had a smile waiting for him.  His laugh was from his belly and contagious.  This all changed at the age of two and a half.  Suddenly the happy belly laugh turned to extreme, violent, tantrums.   Six months later, just before his third birthday,  Kamden began to seize while trying to speak.  Doctors explanation was that his brain could not keep up with how quick he wanted to speak and told the family that he would grow out of it.  What followed was what seemed to be a never ending string of misdiagnosis.  Kamden was diagnoses with Tourettes syndrome.  He began to regress in school and could not handle loud sounds or bright lights.  Kamden would hide under desks and lock himself into the bathroom at school to get away from the chaos.
After Kamden's family was told, multiple times, that his actions were not safe for other students in the classroom, the decision was made to move schools so that he could have more special ed support. 
In December of his second grade year his symptoms escalated.  He began to lash out against other students and have black out episodes and .  He was misdiagnosed, once again, with ADHD, Sensory processing disorder, ODD tendencies and OCD along with extreme separation anxiety.  He was not longer able to maintain in a mainstream classroom.  Kamden's IEP was altered and he began to spend his full school day in the special ed classroom.
His mother did not think that his multiple diagnosis explained her sons regression.  Kamden was no longer able to attend a full day of school.  He could not finish his reduced schedule that consisted of 2.5 hours in the special ed classroom.  A friend suggested she take Kamden to a functional neurologist.  For the first time someone looked at all of his symptoms and tried to find the root and not just treat the symptoms.  After hearing all of Kamdens mothers concerns the function neurologist mention PANDAS.  This had to be ruled out before moving forward.  PANDAS stands for Pediatric autoimmune neuropsychiatric disorder associated with strep.     In order to diagnose PANDAS a test called a Cunningham Panel had to be run that shows antibodies in the brain.  This test cost the family $1000 out of pocket.  These antibodies are a misdirected autoimmune response that a child has due to strep.  It attacks their brain and causes inflammation which in turn manifests in acute onset of neurophychiatric symptoms.  The panel came back with a positive diagnosis.  The family made an appointment with a specialist in California and flew down in February 2018 .       
 To their surprise, Kamden had no strep in his system.  After multiple test he was found to have MRSA in his sinuses, bartonella (cat scratch fever) , h-pylori (causes ulcers and erosion of the intestinal wall)  and an over growth of fungus through out his body.  Kamden did not have PANDAS but a closely related autoimmune disorder called PANS.  
PANS stands for Pediatric acute onset neuropsychiatric syndrome.  
The family finally had a diagnosis. It is believed that Kamdens PANS was caused by the bartonella infection which he contracted from a mosquito bite.  After multiple denials from insurance for coverage of the lifesaving IVIG treatment, that will cure Kamdens immune system and stop the attack on his brain,  the family is left to pay for treatment on their own.  The out of pocket cost to the family is $9,000 per round. Kamden may need multiple rounds every 4-8 weeks before seeing any improvement ultimately costing a total out of pocket cos to the family of $216,000 over a 24 month period.  Kamden has been suffering for 7 and a half long  years.  He, as well as his brothers, deserve their childhood. This illness does not only affect Kamden, it affects the entire family.  Extremely violent episodes put the entire family at risk.  If Kamden does not receive the treatment he requires to heal the inflammation in his brain soon he runs the risk of irreversible brain damage  .This family is experiencing a medical crisis.  They NEED our support.  Supporting the Miller family does not just happen monetarily. Share this post.  Like this .Lets make Cure For Kamden go viral.