My name is Kaitlyn Snyder and my daughter Briella was diagnosed with a rare genetic disorder called Nemaline Myopathy ACTA-1 when she was just three weeks old. In her 19 months of life she has already shown an incredible amount of determination, resilience, and joy. Despite the many medical challenges she faces, Briella is a happy, hardworking, and smart little girl who inspires everyone who meets her.

We are raising money and awareness to help fund more research for a cure for Nemaline Myopathy. A Foundation Building Strength shares our vision to find treatments that change lives, and 100% of proceeds go directly toward research to better understand and treat this disease. Every step forward in research brings hope for Briella and countless other children and families living with this condition.

Your support will help accelerate scientific discovery, support clinical efforts, and bring us closer to treatments that give children like Briella a brighter future. Donations of any size make a real difference in funding the work that could one day lead to a cure.

Please join us in giving Briella and families like ours hope. Donate today and help build strength for a future without Nemaline Myopathy.