- C
- T
- J
Hello everyone! I want to start off by saying that this is something that is very hard for me. I'm very bad at asking for help- I always think I can do it on my own. But four years ago, a little miracle was born, Jaxon. He was two months early and wasn't doing so good. We then realized his heart wasn't working how it was supposed to. He was born with a heart block, a large VSD (hole) in the lower chamber, and his ventricles are switched. Two days after birth, he was life flighted to Spokane, WA where we stayed for two months before we could finally come home. At five months old, we took our journey to California to perform his first open heart surgery. They placed a band on his pulmonary artery and put in a shunt to make his blood go straight to his lungs and put in a pacemaker. This was designed to map his future and buy some time before the main surgery was needed. We went home and one week later he had fluid built up in his lungs, this was caused by the band loosening. We then were life flighted back to California for his second open heart surgery to tighten the band on his pulmonary artery. Now here we are, Jaxon is four years old and slowly growing out of his heart as expected. After multiple tests and meetings with surgeons from all over, it's time to do the main surgery we've been waiting for. They will go in and patch the hole, then switch his pulmonary artery and aorta making his ventricles work normal like ours. They'll repair the pulmonary artery because the band caused damage. It's a very risky surgery but the surgeon thinks Jaxon has a 95% chance of having no complications. In about a month we will be taking this journey and Jaxon and I will be gone for approximately a month. And although we've been waiting for this for four years, and I have the best support from family, it's very hard as a single parent to financially afford to be in another state for a month and still pay for everything back home. The flights alone are spendy in itself. I know of people who have asked where they can donate, and we honestly need any help we can get. Anything helps and I'm embarrassed by this, but I know I need to at least ask for mine and Jaxon's sake. We are so grateful for any thing donated- I will post updates on here while we are away, pictures and more. Any donations are a tax write off as well. Thank you all for the support and prayers the four years. We couldn't have done this without you all.







