UPDATE: We got an appointment at The Mayo Clinic in Minnesota. It'll be mid-December and I've never been to Minnesota, but I hear it gets cold. I need to raise enough for airfares and hotel. My daughter suffers from POTS, Ehlers-Danlos, and a handful of other things like rumination syndrome. Last night her body locked up and started shutting down. She was taken to the ER and given potassium and fluids, and 8 hours later, was released. It happens too often.

Anything helps—specialist recommendations, clinical trial info, hotel points, miles...

thanks!

PM