My husband & I both have Apert Syndrome. We are part of the Children’s Craniofacial Association which serves & empowers individuals & families who are affected by facial differences. Every year at the end of June, they have a retreat weekend where families who have members with facial differences get together; attend symposiums given by individuals that are in the Craniofacial community & learn from one another, and meet with other families/individuals with similar conditions sharing stories, tips on everyday hard challenges with syndromes & enjoying the weekend with people who know how you feel in the comfort of friends  without stares, whisperings & worries. Last year, we lost our baby boy & was overwhelmingly distracted with his postmous medical hospital bills that we missed the application deadline for CCA scholarships. We are hoping we can still find sponsors to help us fund our bus trip from Utah to Arizona (this year’s CCA retreat will be in Scottsdale, Arizona) as well as help us pay for the hotel room (we got the basic cheapest one).  We have contributed to the community ourselves by video chatting with schools across the country about Wonder, the value of true kindness, the beauty in diversity & Craniofacial conditions-building bridges between kids that are scared of people with facial differences & the individuals themselves. We are hoping the community could kindly help us with this. This will be our summer vacation for this year as well as a way of celebrating our angel baby’s birthday on June 3rd & our 2 year anniversary on July 29. It would be a tender mercy