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Hi my name is Evelyn-Hope Kelly .
I’m am 8 year old I was born with a condition called sagittal craniosynostosis.
This is where my skull fused sooner than it should have. When I was 9 months old I had a full head operation to fix my skull to make room for my brain to grow.
Over the years i have been back and forward to Birmingham children hospital for regular checkups With both my head and eyes.
Before Christmas I was took in to hospital to check if I had pressure behind my eyes this meant I had mri scan m,cts scan and eye tests with big machines to look in to and yes this was scary.
Later on in the year I started to feel more ill and bad aches which affected my everyday living and things I enjoy doing the most like my dancing, swimming n just running around like a normal child.
Over the summer holidays I was taken in to Birmingham hospital again and had something called a bolt which reads my pressure waves on my brain. This came back has built up pressure ,more when i was asleep at night n when I was more active.
So this means I will be having another operation on my skull again to make move room for my brain so I can enjoy the things I love doing the most without pain. This will also mean I will have my hair cut off.
I was thinking to give my hair to princess trust for other little girls that r poorly like myself and have no hair and raise a little money for the trust and also Birmingham children hospital for all there help they have gave me over the years.
my target would be brilliant to hit 2,500 and I would share this with both charities.
Hi has Evelyn mum i am so proud of how brave she has been, I would love to take her on a little shopping trip to London if Evelyn get to reach her target and she has a little extra that would be great to put towards her trip.
Has for a little girl this is a lot n she is willing to give her hair up and raise money but still going on a tough journey herself.
Evelyn will also be cutting her hair near to the Time of her operation in November early December.
In advance I would like to say thank u to all that helps even if it’s just 10p every little means a lot ❤️
Organizer
Elizabeth Allen
Organizer

