Our son Jake has recently turned a year old. Unfortunately, Jake has not yet been able to come home with his family. During the pregnancy, our doctors told us that there were some major complications and that they were having difficulty with coming up with a clear diagnosis with what possibly could be going on. They told us that Jake was growing very small and that his chances for survival were very, very slim. Well on 12/14/2017 Jake decided he was ready to take on the world!! The doctors prepared my wife for an emergency c-section.  Jake was born weighing 2lbs 3oz. Right after birth, Jake was taken right away to the NICU team for supportive care. Jake was breathing on his own with the support of some oxygen.

After 1 month in the NICU and waiting on blood tests, we received horrible news that are son has Monosomy 7 - which increases his  risk of developing myelodysplastic syndromes or leukemia. After further testing, we finally got the whole picture of our son's medical diagnosis. Jake was born with an extremely rare genetic disorder called MIRAGE syndrome. Not much is known about the disorder as only 12 cases, including Jake,  have been reported in medical journals. Medical literature states that most children do not live beyond the age of of 2. Jake has a immunodeficiency which is a high risk for infection.

This whole year being in the hospital Jake has went through multiple testing and multiple surgeries. He is one tough little boy and keeps on fighting!! He is now at a facility where we can learn his care routines so he could be able to come home.  After spending a few weeks at the facility we realized that we are going to need help with medical supplies, medical equipment, and rehabilitation equipment that the insurance will not cover. We are getting so close and excited to finally see Jake come home, but we need your help to accomplish that goal! So PLEASE DONATE SO WE  CAN ENJOY THE TIME WE HAVE WITH OUR SON. Thank you so much for your love and support!! 

Love the Knapp’s