"Cowgirl Up" for Jaci Hermstad

I have a rare form of ALS called FUS p525L mutation. The only other person I knew who had this merciless disease was my identical twin sister, Alex. She was diagnosed at age 11 and I watched her die on Valentine’s Day in 2011.

This past Christmas, I found out I have this relentless form of ALS and my life has already changed so much since that moment. I went from driving my car to using a walker in just 2 months. And now I need a breathing machine when I sleep at night.

Right now, there’s no treatment or cure, but there is a GROUNDBREAKING experimental drug call ASO. 

Time is not on my side. But I have hope. I have one life and I want to fight for it with everything I’ve got. I just need your help!



Researchers are currently working on the groundbreaking experimental drug called “ASO” that could save my life.

This process requires $700,000 and is being designed specifically for my severe form of ALS. It is a new procedure that will be considered a "Compassionate Use" for me.   We have divided the fundraising efforts into 7 phases.  With the money we've raised at my benefit on April 13th in Spencer, IA, we are into phase 2 now! 

My only hope is to be part of this treatment.

Please give if you can TODAY  &  GIVE ME A CHANCE TO LIVE!


Keep updated on my journey by following me on Facebook: http://bit.ly/CowgirlUpforJaciFB

Donations (2.4K)

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  • Susan Klamkin
    • $25 
    • 3 yrs
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    • 3 yrs
  • Tom Bohrer
    • $10 
    • 3 yrs
  • Joe & Regina San Fillippo
    • $25 
    • 3 yrs
  • Anonymous
    • $10 
    • 3 yrs
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Jaci Hermstad
Spencer, IA

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