Rebecca Johnson-Von Hippel-Lindau disease (VHL)

Rebecca Johnson, was diagnosed with Von Hippel-Lindau (VHL) at a very young age. VHL is a rare genetic condition that causes tumors and cysts to grow in your body. They can grow in your brain and spinal cord, kidneys, pancreas, adrenal glands, and reproductive tract. Rebecca has tumors in her brain and spinal cord. Her mom, Deb, had the same disease and unfortunately lost her life to the disease when Rebecca was 3 years old.

Rebecca herself just turned 30 on September 10 and has been recovering from a brain surgery for the last couple of weeks.  During that surgery, they removed a large tumor, part of another tumor, and drained a cyst. and knew they would eventually have to go back in and remove the tumor and cyst when her brain could handle the trauma. Unfortunately, Rebecca wound up back in the emergency room and doctors need to operate sooner rather than later to remove this larger tumor and cyst. The cyst has regrown and needs to be removed. Rebecca is receiving care at the University of Pennsylvania under the care of Dr. Zagar. This does mean that she is away from her family in Michigan. 

Rebecca was starting a new ob at an Elder Law Firm on the day of her surgery.  Her job offer has been rescinded and she is now currently looking for work back home in Michigan to be closer to family.  She is struggling to make ends meet and the medical bills are piling up.

Any help you could offer would be much appreciated. If you can donate, share this post, or simply just pray for Rebecca, we would forever be grateful. We believe in the power of prayer and that with God, all things are possible.

Thank you so much and God bless to all!