Courage and Support for Ella Lynn
Donation protected
Here is Ella's story from her mom, Sarah.
Ella has been diagnosed with Stage 4 Neuroblastoma. Her full diagnosis is Opsoclonus Myoclonus Ataxia Syndrome (OMAS or OMS) caused by Neuroblastoma. OMS, also known as "dancing eyes-dancing feet syndrome" is a rare disease that affects 1 in a million individuals worldwide but is more common in infants and young children.
To go back, we began noticing Ella was losing balance and shaking around mid-September. Our pediatrician directed us to Akron Children's emergency, where we ended up staying for three nights. After CT Scans, blood tests, bone marrow testing and a spinal tap, we were released.
Our follow up appointment with the hematology oncology revealed the cancerous masses on both sides of her stomach. The mass on the left side being larger than the right.
We moved right to surgery the next week where the larger mass was removed. We were again in the hospital for three days for follow up appointments and testing.
Once the mass was removed, the plan was then to begin chemotherapy treatments to target the mass on the right side and lymph nodes pulled from the biopsy.
Last week Ella had a port implanted on Tuesday, with three days of chemo treatments following.
As of today, Ella's blood counts have been at good levels.
We will be going back for the second round of chemo in two weeks. The estimated treatment timeframe is 16 months.
Although this may seem like a brief recap, the last month and half has been extremely trying, stressful and many other words as you can imagine.
Thank you for reading Ella's story. Please consider making a donation to help Ella and her family during this difficult time.
This Go Fund Me was created as requested from Jason and Sarah.
Ella has been diagnosed with Stage 4 Neuroblastoma. Her full diagnosis is Opsoclonus Myoclonus Ataxia Syndrome (OMAS or OMS) caused by Neuroblastoma. OMS, also known as "dancing eyes-dancing feet syndrome" is a rare disease that affects 1 in a million individuals worldwide but is more common in infants and young children.
To go back, we began noticing Ella was losing balance and shaking around mid-September. Our pediatrician directed us to Akron Children's emergency, where we ended up staying for three nights. After CT Scans, blood tests, bone marrow testing and a spinal tap, we were released.
Our follow up appointment with the hematology oncology revealed the cancerous masses on both sides of her stomach. The mass on the left side being larger than the right.
We moved right to surgery the next week where the larger mass was removed. We were again in the hospital for three days for follow up appointments and testing.
Once the mass was removed, the plan was then to begin chemotherapy treatments to target the mass on the right side and lymph nodes pulled from the biopsy.
Last week Ella had a port implanted on Tuesday, with three days of chemo treatments following.
As of today, Ella's blood counts have been at good levels.
We will be going back for the second round of chemo in two weeks. The estimated treatment timeframe is 16 months.
Although this may seem like a brief recap, the last month and half has been extremely trying, stressful and many other words as you can imagine.
Thank you for reading Ella's story. Please consider making a donation to help Ella and her family during this difficult time.
This Go Fund Me was created as requested from Jason and Sarah.
Organizer and beneficiary
Amy Davis McNair
Organizer
Kent, OH
Diane Craig
Beneficiary