I have been sick for over 8 years now begining with chronic back pain on my right side which is still constant. This led into sleeping constantly to escape the pain, over the years I have learned to live with the back pain but if you asked me I would tell you that on the pain scale it's a 10. About 5 years ago I started getting dizzy and was soon diagnosed with P.O.T.S.(Postural Orthostatic Tachycardia Syndrome). Pots is when heart rate and blood pressure increase or decreases causing dizziness or fainting upon sitting or standing. A few years later instead of just getting dizzy I would pass out this slowly detiorated to the point where now I can only sit up for 8 minutes without passing out and cannot stand u, this causes me to be in a wheelchair, specifically one that reclines (note; if you see some one in a wheelchair dont say things like that must be nice or that looks comfortable etc. this is just upsetting at least to me since I just want to be walking). Doctors are still searching for answers but for now this is my life. It's not always fun but I know there is a reason God gave me this situation I might not know it yet but I have faith that something good will come out of this. The cost for my service dog is around $11,000. The reason why this was set up was because i dont want my parents to have to pay the full cost since they already do so much for me i cant even be left alone anymore since now i have what my mom calls the "funky pass out" which is when i pass out while lying down which used to be my safe place. So if you can donate that would mean alot to me. With a donation of a minimum of $100 I will create a spoon ring for you (one per donation). the reason why I am creating spoon rings is because of the spoon theory, this theory is a way of explaining an invisible illness using spoons (link to original story here Spoon Theory ). After you read the original here is an example of my normal day dealing with a chronic illnes; my day begins with mom calling me on the phone to take my first pill which needs to be taken at least 30 minutes before I eat a few minutes later mom comes in helps me get dressed and out of bed (remember no walking so slow, tedious, and no independence) we go to the restroom and then the couch (were I spend most of my day). Usually my stomach hurts anytime I eat and I feel nauseous in the morning which causes everything to go slower since I don't want to eat but I do since I have been down that path before. After breakfast I usually go to the bathroom and on the way back pass out (this causes me to not want to go often since passing out after is common for me). Most days are spent on the couch but I don't just do nothing (I do usually take at least one nap a day since passing out is exhusting) I take online college classes due to my condition. I hope, once I'm well enough, to work with those who have special needs. By lunch my stomach usually isn't nauseous, it still hurts though. Almost everyday or at least once a week we go out either for doctor (more often than not) or something to just get us out. Every time I go out I pass out at least once causing me to lose energy making the excursions short (usually one or two places). Once everyone is home we hangout together on the couch. After dinner I usually go to bed around 10pm. Rinse and repeat. The next day is the same with slight changes depending upon if I'm having an ok or bad day. So with this gift of a spoon ring you can have a visual way to understand, remember, and share an explaination for any type of invisible illness.
Thank You for reading my story and your consideration of a donation to help me get Casey.
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