ECZEMA IS RUINING MY LIFE, LITERALLY! It started in July 2015. I noticed a small rash on my stomach. (I have shared some of this on Facebook.) I was told it would go away in a couple of weeks. NO SUCH LUCK!! It has now been almost three years. I'm going to try to keep this short while getting my point across.
After about a year of that, I was finally given the diagnosis of acute eczema. Here are some of the photos of the phases I have been through.
June 2017, scratched myself into a blood infection. One week in the hospital.
November 22, 2017, went to ER with horrible shoulder pain. "You must have fallen!" NO, I DIDN'T. Couldn't move Turkey Day. Next day I go back. They finally take me seriously. That was a Friday. By Sunday I was having emergency surgery to remove an infected bone from my shoulder. And - another blood infection.
After a week in the hospital, PICC line in my neck, chest....ugh...I was told I needed 6 weeks of antibiotics. PROBLEM: MY RASH WAS SO BAD THEY DIDN'T FEEL IT WOULD BE SAFE TO GO HOME - BANDAGES TO COVER MY PICC LINE WOULD NOT STICK TO MY SKIN.
That is the final line that went into my heart!
So, from December 1 to January 12, 2018, I was in a nursing home. Through all of the holidays. Just there. I did have a lovely 82 year old roommate. :) It was horrible to say the least.
Got out, couldn't return to work. Needed another surgery - cancer scare. THANK YOU GOD FOR HELPING ME DODGE THAT BULLET.
Long story short, I am not eligible to draw unemployment as I am out of work due to health issues. I am on a fairly new drug to help my skin. Not sure if it is helping. I AM SURE that is is damaging my eyes and joints further. Side effects that should "PASS". Get to give myself an injection every two weeks and then suffer the joint pain and blurred vision.
Take all that, add extreme anxiety and stress. That's where I am. At least once a week I dream (nightmares) that my skin is falling off.
(My skin piled on the floor at the nursing home!)
Money to pay back the people who have been helping me since Nov.
Money to seek a treatment or a program that may be able to help me with this problem. Out of work = Medicaid = NO DOCTORS WANT YOU. If the injection works, it's forever, and I think the CONS are more than the PROS. I am willing and wanting to move out of state to find a doctor who can actually help me.
I am so worried about the bills. It's hard to stay focused and positive with that hanging over my head.
Better quality of life until I can get back on my feet.
OH YEAH! I'M JOB HUNTING AGAINST DOCTOR'S WISHES BECAUSE I AM A SOLDIER AND I HATE NOT BEING ABLE TO LIVE. THOSE WHO KNOW ME KNOW I LOVE LIFE. I WILL NOT WASTE YOUR MONEY.
MY SKIN NOW:
Just so you understand, I'm not vain, and it is not about my skin. It is literally about the fact that I could scratch and die.
I don't like asking for anything, but this is different! And prayers are welcome. Probably more valuable than cash.
If you can help, thank you!!
**PLAN TO DONATE SOME TO THE NATIONAL ECZEMA FOUNDATION AND ST. JUDE'S CHILDREN'S HOSPITAL**
- Shari Nerreau
- George Chardiet
- Dawn Carter
- Mary DeNure
- Peter Aspinwall
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