Cookies4SMA

Hi, I’m Dana and this is my friend, Ben. 

I’m 9, and I’m the founder of Cookies4Cures, a nonprofit that raises money for research into rare pediatric diseases. Ben is my super friend. He has a disease called Spinal Muscular Atrophy (SMA). 

42850526_1573246118146013_r.jpeg^ This is us meeting Lenny Kravitz!!!

SMA is a degenerative disease. That means it gets worse as Ben gets older. Kids with SMA usually have shortened lifespans, but just because that’s how it’s been in the past doesn’t mean that’s what will happen to Ben. I am fighting to give Ben his best chance!

42850526_157323135827145_r.jpeg^ I was a Global Genes Champion of Hope in 2019 and Ben got the same award in 2015!

Research is amazing, and scientists have already made great advancements in treating SMA. That’s why Ben and I are teaming up with Cure SMA, the leading SMA organization in the U.S., to help fund a research grant that will advance scientific knowledge of this disease and hopefully lead to new treatments that will benefit Ben and the thousands of people in the world like him. 

Sometimes people ask me why I’m friends with Ben since he is a lot older than me. Ben is a super fun and friendly guy. It would be hard not to be friends with him. Also, he is a math genius and I love math, too. I really look up to Ben, and I hope I can be like him one day. 

The research to help Ben is really expensive. Cookies4SMA needs to raise $50,000, which will go a long way in funding an important Cure SMA research grant. Will you help us?

We raise most of our money by baking cookies. Lots and lots and LOTS of cookies. Over 12,000 cookies so far!

42850526_1573231459866499_r.jpeg^ These are a few of our cookies.

Sometimes we set up cookie pops-ups outside our local grocery store, Lucky’s Market, or pull our cookies around the block in our red wagon. Other times, we mail our cookies all over the country. We even pack our cookies into suitcases and take them on airplanes to set up cookie stands in other cities. 

42850526_1573232778130888_r.jpeg^ This is one of our cookie pop-ups.

We also have a dedicated community of people on GoFundMe who follow our story and support us. 

Everything we have accomplished has been because of our amazing community of bakers, sellers, and supporters. Thank you for being a part of our story!!!

With hope, butter, and love,
Dana, Ben, and the Cookies4Cures kids


PS. Here are our other campaigns.
Read all about PANS and our friend Ollie at Cookies4PANS !
Read all about Batten and our friend Mila at Cookies4Mila !

42850526_1573246693977155_r.jpeg

Donations

  • Alexis Perella 
    • $10 
    • 9 d
  • Felice Gersh 
    • $500 
    • 10 d
  • Valentine's Day cookies 
    • $541 (Offline)
    • 16 d
  • Ben's Facebook Birthday Fundraiser 
    • $750 (Offline)
    • 16 d
  • Dana's Facebook Birthday Fundraiser 
    • $465 (Offline)
    • 16 d
See all

Organizer

Alexis Tygenhof Perella 
Organizer
Boulder, CO
Cure SMA 
Registered nonprofit
Donations are 100% tax deductible.
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