Connies osteopetrosis journey

Hi there my name is Alice and i am raising money for my brave and beautiful daughter Connie frances

Our darling Connie is just 12 weeks old and in the past week she has had a diagnosis of osteopetrosis a very rare condition that is effecting the way her blood cells work and bones grow.

At the moment we are constantly  in our local hospital where connie is recieveing regular blood transfusions and platelets to keep her condition stable.

We are desprately waiting for a donor and bone marrow transplant to save connies life this will take place at great ormand street hospital in London. We are preparing for a very long stay away from our family and a scary uncertain journey for us but we believe connie will take this in her stride with a smile as she has done throughout this complete and utter nightmare.

All the money i raise will go towards her current and future medical expenses of which if you can imagine is quite substantial.

❤️❤️I have 100s of mesages from amazing kind people offering help and wanting to give finacial support to connie so this is the reason i have set this page up for her ❤️❤️.... If you can spare anything at all to go to our little warrior and give her every chance of fighting this please please do, she deserves of every penny for what she has gone/going through already after just entering the world and like any parents we want to give her the best life and future possible.

Thank you ever so much to everyone for your donations, love and support you dont realise what it means to me and how much strength it gives me.

Love Alice . ❤

Please also consider giving blood and platelets and bone marrow.. you dont realise the importance until you are in a situation like this.