Complex Lymphatic Anomalies Patient Support

Please join me in supporting our end of year efforts to raise money for the Hope for Tomorrow Campaign, paving pathways for our rare disease champions! LDGA supports individuals and families with Complex Lymphatic Anomalies by creating patient support communities, educational initiatives and contributing to ongoing research for these ultra-rare, underfunded diseases in this category.

Ultra-orphan diseases' rarity, like CLA, contribute to a severe lack of funding for their patient communities and research toward both viable treatment options and cures. Our patients' and their families incur thousands and even hundreds of thousands of dollars worth of medical expenses to manage and address the complex presentation of our diseases. Our patients have orthopedic, dental, pulmonary, cardiac, dermatological, gastrointestinal and endocrine involvement due to malformations of their lymphatic systems. They can have complications involving breathing, vision, mobility, digestion, inability to fight infection, skin abnormalities, bone pain and degradation and many more.

LGDA helps the CLA patient population find knowledgeable physicians at the few established Vascular Anomalies Centers in the world, fosters patient and family support communities, provides mental health resources, assists with travel to care and promotes understanding of current research findings and what it means for the patients' care.

Any donation is greatly appreciated and will go a long way in supporting the patients and families fighting these insidious diseases. Thanks in advance for your contribution.