This is all hard work to raise awareness and funds for not only Connie, but for Children who suffer with the debilitating Genetic Disorder called CDKL5. CDKL5 isn’t a well known disease so it’s down to us mum/dad’s carers and grandparents to spread awareness. So this is what we’re doing. With Connie’s diagnosis it means we face daily symptoms of the genetic disorder. Raising funds means so much for Connie’s future, it allows her to continue with her Physio Therapy and to supply specialist equipment to make her life a little easier at home.

We will also be using the funds to supply SEN equipment for other Children at Bristol Hospital who have been simply incredible with Connie's care and supporting us every step of the way.

This horrible condition is so cruel.. with a wide range of symptoms from seizures.. to not being able to talk and walk. But Connie is so brave and faces every challenge head on.. with Big Brother Noah being her biggest Champion!

Please help to sponsor myself plus my amazing in-laws.. Alan (Grandad), Mark, Taryn and Nicki who have recently decided to help our precious Connie.

We will be climbing Ben Nevis the first weekend in July 26' so the count down is already on!

Thank you!!