CLBDI Spring Fundraiser

Hello Lewy Warriors,

We're back and raising money this spring for the Lewy Body Dementia research being done at UWO. All money will go directly to Dr. Pasternak and his team in their quest to understand LBD. This fundraiser will run from March until late May so there is plenty of time to share this with friends and family.

Please consider checking out our digital art show, "Our Emotional Journey With Lewy Body Dementia", launching on our website on the 26th of March.

"Lewy Body Dementia is a form of dementia that occurs due to abnormal deposits of a protein called alpha-synuclein inside the brain's nerve cells. These deposits are called "Lewy bodies", named after the scientist who first described them. The deposits interrupt the brain’s messages and affect the areas of the brain that involve thinking and movement. We do not yet know why or how these Lewy bodies form. LBD can occur by itself or together with Alzheimer's or Parkinson's and it accounts for 5-15% of all dementias. Unfortunately, there is currently not a lot known about the genetics of Lewy Body Dementia.

​As of right now, there is no cure and LBD is fatal. Between 10-15 percent of all patients with dementia have Lewy Body Dementia. Though Lewy Body Dementia is the second most common form of dementia, it is the least well known. One of the major issues that people diagnosed with LBD and those in the medical field face is that the diagnosis can only be confirmed through an autopsy after death. This is one of the leading reasons why this type of dementia has been such a mystery to the medical world until recently and why more research is desperately needed."

Visit our website for more information:


Joseph Daniel
Kitchener, ON

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