As many of you know, Claire is continuing her life's journey with Juvenile ALS ( also known as Lou Gehrig’s Disease). As this rare and cruel disease has progressed, her muscles have continued to get weaker and with that, she has sadly lost her voice.
Together, we can help her get it back!
A number of communicating devices and methods have been tried with limited success, and she has been given a recent opportunity to obtain a NueroNode. NeuroNode is the world’s first wearable EMG assistive technology device. It gives those with ALS/MND, spinal cord injury, or any other condition causing paralysis and loss of speech a connection to the world.
While she will likely never be able to speak like she used to, this amazing cutting edge device could help Claire’s “voice” be heard again. In addition to all of the great prayers and thoughts that you continue to send to Claire and her family, we really need your financial help to make this happen for them.
There are 2 things that you can do today so together we can buy this device for her:
(1) Please spread the word about Claire's story and this "Go Fund Me" account by blasting it to all of your social media platforms. (2) Please consider making a small donation today to help us meet our goal.
Thank you in advance for your thoughts, prayers and support!
- trina anise
- Chris and Sandy Brown
- Jenn, Dave, Alex and Connor Balcom
- Angela Brooks
- Norman & Janet Clark
Organizer and beneficiary
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