CIDP treatment for Braden

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CIDP treatment for Braden

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Hello,

Our son Braden was diagnosed with a rare nerve disorder called CIDP in 7th grade. He is now a junior in high school. He has received numerous IV treatments to help but nothing has worked yet. The treatments he received cost between $20,000 and $40,000 per month. Insurance does cover a lot of the cost, but not all of it. We also just found out he is being sent to Chicago for a second opinion. I have had several people reach out and ask how they can help so I decided to set this up. Please do not feel obligated but everything received is appreciated and will be used for medical bills and travel costs.


What is Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)?
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder of the peripheral nerves characterized by gradually increasing sensory loss and weakness associated with loss of reflexes. The number of new cases per year of CIDP is about 1-2 per 100,000 people, but as the disease can be present in a person for years prior to diagnosis. CIDP is caused by damage to the covering of the nerves, called myelin. It can start at any age and is more frequent in men than women. Many people with CIDP benefit with treatment. Although there is a wide spectrum of how severely people with CIDP can be affected, some with the condition require assistance to perform daily tasks. In the more severe cases devices like wheelchairs or walkers may be needed for mobility. One of the goals of early diagnosis and proper treatment is to avoid this level of disability and to improve the long term outlook

In an effort to alleviate the financial burden, we have set up a GoFundMe campaign with a goal of raising enough funds to cover his treatments and other health related costs for one year.

Organizer

Lindsey Wellen
Organizer
Collinsville, IL
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