The 16 year odyssey can be summed up: I was working on boats in key west started getting tons of utis , assuming it was from bacteria in the ocean, I soldiered on. Until one day at 26 the uti pain never stopped, it increased tenfold. I wound up in a 16 year battle for any quality of life , 12 epiderals, and two, yes two back surgeries, oh yes just had my gall bladder out!!So here is the skinny:
-2 years of searching every urological cause as the pelvic floor hit before back.
-more mris, cat scans, nerve tests that left me seeing stars, and diagnostic tests that took me to the brink!
-discover after seeing neurological I have two degenerative discs. We believe this the cause of all pain since it's my l4 l5 lower back discs and it seemed to be pushing on my pelvic floor.
-after 12 epiderals, they don't work and I'm only left with surgery. So, first spinal fusion was 2007. ---Everything went wrong including, I left weighing 90 pounds and they prescribed me enough meds for a football team. I was all new to this, and I was flatlined within a week.
-for two years every month I get an X-ray of my back and see my surgeon and he keeps telling me all is going well, but I'm in more pain now in my back.
-go get a new opinion by a dr who my friend had great results with, minimally invasive surgery, he looked at me and the MRI, and told me my dr was lying they all looked the same! Schedule surgery at mt. Sinai in Mia beach , everything was top notch. I knew this was it. And it was for my back!
-6 years later I'm in the worst pain crisis of my life, I was 20
Minutes from death from a medicine prescribed me and it took 3 days to recover in hospital.
-so I didn't return to key west but stayed in asheville because the care was great, cost of living low, and I got a diagnosis! And then but aside from giving you all these meds that make you throw up all day n wear something under your pjs as you never know what will befall you.
- now, I'm all hooked up with a protocol using western meds, acupuncture , cbd, and thc oils. In California, which is why I have to move, I'm applying for some patient clinical trials as well!The only proven regimen for this disease is thc and cbd therapy. My drs say right to my face, I wish I could prescribe you what you need to live a fully realized life, but these are the parameters of the state. Well those parameters are slowly killing me, making my condition 1000 times worse and I know my body can't handle much more of this. No body could. But I do, I always get back up, and I will succeed, and you will all come to a donor thank you celebration! Thank you!