
Christopher’s visual bucket list and hearing aids
I have went back and forth with this for over a year. As a Mom I want to be able to do everything I can for my Children and I work and do what I can. So when my oldest son was born we found out he had a severe hearing loss bi-lateral, did the speech IEPs got him through school and had finally had a plan for him to go to school to be an X-ray tech however a trip to the eye doctor in July of 2019 changed everything. 2 years prior we were told he had cataracts but they were not bad. Now fast forward to 2019 I was told he had RP (retinitis Pigmentosis) and was sent to retina specialist who upon genetic testing determined he was Born with Ushers Syndrome. Christopher has already lost all his side vision and he is losing his sight pretty fast. I was able to take him to see the ocean back in March and he has several other thing he would like to do. As his Mama I want to give his hearts desire but it’s just me and my kids and I only make about 20,000 a year. I hold my on but it’s paycheck to paycheck and I struggle with asking for help but was informed it’s not about me and I should at least try. So here I go reaching out for prayers and if God lays it on your heart to donate to his Virtual bucket list, it would be much appreciated. If I would’ve found out a long time ago he was going to lose his sight I would have filled his world more. This Mamas heart is broken. My son has such a innocent beautiful soul and is such an amazing human being and if you want to help I would forever be Thankful❤️ I have no idea what goal to set I just know anything would be helpful.
From his Mama, brother Jonathon and sister Makenzye