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Our amazing little boy Christopher was diagnosed with Epilepsy in 2013 when he was just 4 years old. Since then he's been dealing with not only the seizures, but also some pretty severe mental & emotional side-effects from the different seizure medications he's prescribed. After a recent, more in-depth, MRI, which focused solely on the left frontal lobe of his brain, which is where we knew his seizures were coming from all along, it was found that Christopher actually has Sclerosis of the brain, which is basically a tiny bit of scar tissue on the brain, Turns out that tiny bit of scar tissue is what's been the cause of his seizures all along. As shocking as this was to find out, I finally had some of the answers I'd hoped for for so long, and because we now have these answers, there is a light at the end of the tunnel. There is a surgery that can be done, that if successful, there is a 90% chance that he'll never have another seizure again in his life. Right now without the surgery, there is absolutely no chance he'll ever grow out of them, I'm not in any way asking for money to cover the surgery, because as far as I know, it will be covered by our insurance. However, this whole process could last anywhere from 3-6 months, as they go in phases that require 2 week hospital stays each time. May 1st will be the beginning of Phase 1, he'll spend 12 days in the hospital, be pulled off all his meds, so that hopefully the doctors can catch 2-3 5 minute seizures, so that they have active seizure activity on record before the actual surgery. If they are unable to do this in 12 days, phase 1 will continue to be rescheduled until the doctors get what they need. Once this happens, on to Phase 2, which is basically the same thing, only this time, they make an incision in his head and attach the electrodes directy on the base of his skull. Again, doctors are looking for the same thing, 2-3 5 minute seizures. Once all of this is complete, and who knows how long this could take, his father & I will meet with the team of doctors & surgeons, and of course proceed with the actual surgery. This is obviously going to require his father & I to take a lot of time off work, and we already live paycheck to paycheck. So I've decided to swallow my pride and ask for help. Christopher deserves nothing more than to be the happy go lucky child he once was, and without this surgery, I don't know that that will ever happen. This is by far one of the hardest things I've ever had to deal with in my entire life, but now on top of that, I'm stuck wondering how we're going to manage to pay all of our bills & any extra expenses that will come about through out this whole process. So again, I ask, from the bottom of my heart, please help my family and I make it through this already extremely stressful situation by helping alleviate some of the financials struggles that we are soon to face. Anything will help & will be more appreciated than I could ever even express. Thank you so much to any & everyone who took the time to read this. God Bless you all!!
Organizer
Brittany Tasker
Organizer
Alliance, OH