So I’m doing it…I’m finally taking on the London Marathon in support of Great Ormond Street Hospital Children’s Charity! I would be so grateful if you could spare whatever you may have to help raise money for this magnificent charity - one that is incredibly close to our family.

As many of you may already know, GOSH is a hospital and a charity very close to our hearts, due to the care they have given to our daughter Edie since birth. Within hours of being born, Edie was whisked away from us due to the abnormal markings on her skin and the difference in size between her limbs. Between both Medway Maritime Hospital and GOSH that day, they diagnosed Edie with an incredibly rare condition called CMTC (Cutis marmorata telangiectatica congenita). So rare in fact that fewer than 300 people have been recorded in medical literature as having been diagnosed with the condition. Given how little they know about the condition, their care of Edie has been second to none. Regular appointments and tests are helping them to understand the condition more, with unpleasant procedures for genetic testing and blood tests to come further down road for Edie to help understand more how her condition will shape her future. This motivates me more to want to raise the money to help fund this incredible care and treatment they provide, as well as for those in far more serious conditions than Edie. GOSH are an incredible hospital full of incredible doctors and nurses, and they deserve our full support.

I would really appreciate whatever donation you are able to share with this amazing charity. Let’s help get the most vulnerable children continue to get very best care!

Chlöe