Chloe Our Williams Syndrome Warrior


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As many of you know Chloe was born on August 18th, 2016 with a very rare genetic condition called Williams Syndrome. 
Morgan and David were originally told that Chloe had a heart murmur. Chloe was sent for a follow up echocardiogram with a pediatric cardiologist. It was at this appointment that Williams Syndrome was suspected as her heart showed stenosis of both the pulmonary and aortic arteries. (Since then we have come to understand Chloe's heart issues are much, much more complex.) 
After seeing a geneticist the confirmation of Williams Syndrome was diagnosed. 

Williams Syndrome is caused by the spontaneous deletion of 26-28 genes on chromosome #7. It is characterized by life threatening cardiovascular disease, developmental delays and learning challenges.

After being monitored closely for the past year and watching Chloe becoming bigger and stronger the doctors feel the time has now come for the inevitable...the day we all have been dreading...Chloe needs OPEN HEART SURGERY.

The pediatric cardiothoracic surgeon needs to go in to fix the obstructions on both the right and left sides of Chloe's heart. Inclusive of Chloe's right ventricle, left ventricle, her septum, pulmonary valves, pulmonary arteries and aortic arch.  This is a complex pediatric surgery, however Chloe is in the great hands of Dr. C. Calderone.

As you can imagine this is a very emotional and frightening time for Morgan and Dave.  Chloe is scheduled for for open heart surgery next Wednesday November 29th at Sick Kids Hospital. The time frame of Chloe being in the hospital in the city is 3-4 weeks. 

Greg, Julie and I thought we would put this together to see if we could reduce some of the costs and anxiety that can go along with such a fragile time in Morgan and Dave's lives. Some of the costs that they will be incuring are hotel stay...to be close to the hospital, as there is no place for parents to stay while Chloe is in the ICU or the step down unit. The gas money for back and forth as Morgan and David want to make sure Mason's routine is as seamless as it can be during this time. The parking costs, food, coffee and other incidentals that may pop up during this difficult time.

We truly appreciate you taking the time to read this.

Please pray for Chloe, Mason, Morgan and David at this time. 

We are hoping you will join us in supporting Chloe, Mason, Morgan and David on this journey to get their precious baby girl's heart healthy.

Greg, Julie and Ainsley

Donations

  • Carolyn Hanson 
    • $100 
    • 31 mos
  • Tia Downer 
    • $100 
    • 31 mos
  • Catherine Gorman 
    • $25 
    • 31 mos
  • Ellen & Bill Cochrane 
    • $100 
    • 31 mos
  • Mary Hockaday 
    • $200 
    • 32 mos
See all

Organizer and beneficiary

Ainsley Brown 
Organizer
Stouffville, ON
Morgan Clark 
Beneficiary
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