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What is M.E./CFS, myalgic encephalomyelitis/chronic fatigue syndrome?
M.E./CFS is a potentially-fatal and disabling neuroimmune disease with dysfunction of the immune system, thus affecting every organ system, especially the neurological and endocrine systems. It can isolate many as bed-bound, wheelchair-bound, house-bound with no treatment and no recognition from their doctors. This is the most common of the most unknown serious severe diseases. Millions are ill with it and it is mocked as lazy and fraudulent. Many children suffer from M.E. Many ill with it end their lives/commit suicide after suffering for possibly 30 years with no recognition in isolation. The extreme light, noise, and movement sensitivity can leave those ill in a dark, quiet room for years. Because we "pay for it" later once we participant in basic activities of daily living (showering, eating, etc.), you may see us out in public one day and then disappear in bed for days or weeks or months afterward. Weappear healthy yet we are very ill. Many doctors recommend exercise, which actually makes one very much worse. These people desparately need hope!! A cause must be found with biomedical research if we are not to be seen as lazy and for a cure to be found. Please help by spreading awareness and/or donating.
You or a friend/family member post a hilarious video eating a hot (or pretend hot if you must) chili pepper or tabasco sauce and tag others you nominate/challenge and donate, OR if not, just post the donation page link on your FB and if you donated be sure to say so. BUT for more impact if you'd like wait to post videos on the day or at least week of May 12 M.E./CFS Awareness Day.
The Chilli M.E. Challenge is an advocacy initiative started by 4 girls ("4 Chilis in a Pod") who came together to spread awareness and raise funds for *biomedical* research for myalgic encephalomyelitis (M.E.) /chronic fatigue syndrome (CFS) set to launch the week of May 12 M.E./CFS Awareness Day. HAVE FUN!!! --- Nicola, Lindsey, Catherine, and Brenda :)
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- Cindy Lafferty Paterniti
- Georgia Alison
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