Hi my name is Sylvia I’m the mother to the most incredible, smart, funny, caring loving, absolutely just amazing little girl. Her name is Chevelle Toni-Kay. (Yes like the car) she was born December 6th 2012 she was just perfect ❤️ the first 9 months were just perfect. Than at her 10 month check up with the pediatrician I told him I was noticing some things at home that just did not seem to be normal. like how she would cross her legs when I would pick her up. Or when she would constantly shake her right hand. And she basically reverted back to a baby stage. She wanted to do nothing but eat and sleep. Needless to say the doctor sorta just brushed it under the rug and said she’ll get back to doing what she wants to do when she wants to. That didn’t sit very well with me I called my cousin on my way home crying and I asked her for her pediatricians number. Dr. Kopas got us in the very next day never met this gentleman a day in my life and he looked at my daughter when he came into the exam room and told me I had 2 Options drive myself to Banner UMC or take an ambulance because he believes it’s something neurologically going on. So I got us to the hospital. They were already waiting for us to arrive. As soon as we did they did an emergency CT, MRI and x-ray. I was in a room full of doctors. That’s when the neurologist proceeded to tell me my daughter had a severe case of Hydrocephalus. Water on the brain her ventricles ended up being so big it smashed her brain matter and tissue to the outer parts of the skull. The neurosurgeon told me if I would’ve waited a day or two more I probably would’ve found her dead in her bed. Not something you wanted to hear. They did emergency surgery and they said the only thing that saved her life was her soft spot wasn’t fused and actually gave the skull room to push out. They were afraid she was going to have some sort of learning disability not be able to walk you name it they gave me a list of things that could possibly happen. They did emergency surgery (October 13 2013) and placed a VP shunt which goes through her main ventricle and drains the CFS fluid into her stomach. The surgery went very well. We proceeded back to our normal lives. Now Fast forward to her year and a half check up with the neurologist (March 16th 2015) the day we will never forget. It’s the day we heard the words “your daughter has a brain stem tumor, I’m referring you to the children's oncology clinic. The neurosurgeon said that the reason why she had hydrocephalus is because the tumor sits right above the brainstem blocking the CFS fluid from draining. Two days later we saw the oncology Dr. They took her case to the tumor board reviewed it and said it is most likely a LGG (Low Grade Glioma) they said we can do what is called watch and wait. This meant MRI scans every 3-4 months to keep track of it. Up until she turned four we were told she would have to start some sort of chemotherapy treatment to try and shrink the tumor. Be cause it was growing. So on October 30th 2017 she started chemotherapy. During the course of her treatment there were ups and downs. But she did absolutely amazing. The treatment was a year long. Two types of chemotherapy she was getting. We went once a week for a year. The treatment worked rather well. The tumor shrunk quite a bit. That was great news. so the past couple of years we have been on watching it through scans. Now come to this past January we were told that the tumor appeared to have grown a bit. We talked to the dr and he said we will re scan in early April. Well this was not the news we were hoping for. For Our sweet baby girl. We were told on (4/18/22) that her tumor has appeared to grow over the pat few mri scans. That meaning she will have to start treatment again. They are shooting for may 2nd to get Everything going. My heart is just breaking. I have so many whys. She just turned 9 in Dec I’m looking to get a 2nd,3rd,4th opinions. I’m hoping to find someone before may 2nd it’s been 5 years she’s been off treatment. And now she will have to endure this all over again. No child should have to go through any of this. So I’m asking for help for this is the first time making a go fund me. It will be set aside for bills, any and all medical expenses and anything else that may come up. I took off work last time she went through treatment. And I most likely will this time as well. Anything you can donate is greatly appreciated and thank you in advance. God bless you all.