Charlee has a genetic disorder called Hypermobile Spectrum Disorder, or HSD.
HSD refers to a group of conditions characterized by excessively flexible joints that cause systemic symptoms throughout the entire body and is directly related to almost every co-morbidity Charlee is diagnosed with. (She currently has 14 diagnoses that all fall under the HSD umbrella.)
In the summer of 2025, Charlee went through a rigorous and thorough evaluation by an OT at Ability KC.
Ability KC works with people with disabilities and has an excellent driving program to determine what types of vehicle modifications are needed to help those with disabilities live independently and drive.
Charlee’s assessment showed that she needs specific safety features to ensure safe driving.
Some (not all) key features needed are:
- active lane assist
- switching lane alerts/cameras
- blind spot alert
- front/back cameras
- power seat adjustment
- collision detection technology
- parking assistance
- adaptive cruise control
- comfortable seating for back and neck
- midsize/higher off ground
- …and more
Possible Customization after buying car:
- reduced effort steering
- swivel driver's seat
Most of the features Charlee needs are found in cars with newer technology called ADAS. The features are found mostly in cars dated 2023-current. These cars are higher trim and typically run between $28k-$38k, which is why I set the goal to $30k. We are still in the process of narrowing down our search, and we can update donors as we move along.
I am also applying for scholarships and grants.
We are prepared for monthly payments but are working towards a significant down payment to lower monthly costs, as Charlee’s diagnoses require a significant amount of healthcare costs each year.
Our focus is helping Charlee—at 17—to begin the transition into adulthood and living independently. One of the first steps is getting her successfully (and SAFELY) behind the wheel!
If you feel compelled to help us financially meet this need, thank you! We have called upon our village often ever since her first diagnosis of scoliosis in 2018.
We love all of you so much. ❤️