CHARGE on Feargus

This page is for our fighter Feargus, he was born on 2/3/15 and immediately transferred to York hill where he was later diagnosed with a rare genetic syndrome, CHARGE syndrome. For Feargus this means he has a rare form of congenital heart disease called truncus arteriosus type 1a with 2 other holes in his heart meaning he had to undergo 20hours in total of open heart surgery before he was even due to be born, he has lung disease requiring oxygen therapy due to the damage caused by long term ventilation and recurrent pneumonia. He has floppy airways and compromised immune disorder meaning the smallest of viruses or infections are a huge fight for Feargus and often end him in ICU. He was born with a malrotation of the small bowel, he has no swallow so is fed directly into his tummy via a g-tube. He has a small under developed brain, registered blind and deaf in one ear and loss in the other. he has spent the majority of his life in hospital which has caused extensive physical and mental development issues. We have been told Feargus will not sit, walk, talk. 
All these issues, fighting daily to survive.. he is one of the happiest and determined baby's I have ever met!! 

Nobody thought Feargus would be here today, every day is a blessing!
He has taught us more than we could ever teach him and has touched the hearts of so many! We have had numerous people asking us if they could raise funds for Feargus to help him lead as good a life he possibly can, which is why we decided to set up this page. The funds raised will go towards equipment to let Feargus work on his physical and mental development as well as equipment to help him along the way.

we would like to thank you in advance for your kind generosity.
with love and thanks from Feargus & family
www.facebook.com/chargeonfeargus