Changing the Future for Ichthyosis, One Step at a Time for our Olivia x

Our daughter Olivia was born with a rare form of Ichthyosis — a lifelong skin condition that affects only a small number of people around the world. From the moment she arrived, she’s shown incredible strength that inspires us every single day!

Olivia spent the first five months of her life in hospital before she was able to come home. Living with Ichthyosis means Olivia’s skin needs constant care and protection. Every day brings new challenges — from managing discomfort to keeping her skin healthy and preventing infections. But despite it all, she faces life with a smile that lights up every room.

We’re aiming to raise £15,000 with our fundraising events over the year to support the Ichthyosis Support Group (ISG) and fund vital research into better treatments and long-term care for those living with this rare condition. The ISG offers life-changing support to families like ours — providing community, resources, and hope when it’s needed most.

By donating, you’ll be helping to:

Every donation, no matter the size, brings us one step closer to a future where children like our Olivia can live more comfortably and confidently.

If you can, please donate to help us reach our goal. Together, we can make sure that rare doesn’t mean forgotten!

Thank you for being part of Olivia’s journey — and for helping change the future for Ichthyosis!

Love Jack and Sian x