CB is the third child of Micah and Rebecca Chappell. CB is 8 months old and after extensive testing, has been diagnosed with Canavan Disease. Canavan Disease is a progressive, fatal neurological disorder that begins in infancy.
CB was our miracle baby. All of our kids are special, but he was our miracle. After our first son was born, we actively tried to have more children; unfortunately we suffered a miscarriage after about two years of trying. We decided to look at adoption, and were blessed with an incredible little girl. We still kept trying to add to our family, but to no avail. We finally gave up after six years of trying to conceive another child. That was all it took, Rebecca got pregnant the next month with our precious CB.
Canavan Disease will break down the central nervous system preventing the proper transmission of nerve signals. The genetic abnormality causes a lack of an essential enzyme causing deterioration of the white matter (myelin) in the brain. Symptoms of Canavan Disease usually appear during the first 3 to 6 months of life and, unfortunately, progress rapidly. Symptoms include lack of motor development, abnormal posture, nasal regurgitation, feeding problems, increasing head size (macrocephaly), reflux with vomiting, seizures, severe intellectual disabilities, and may also develop paralysis, blindness and hearing loss.
Death often occurs before 18 months of age since there is no cure or standard treatment for this disease. Treatment is symptomatic and supportive.
The significant cost of additional testing, treating the symptoms of this disease, the travel expenses to specialists in Spokane and Seattle from our home in Idaho, and the eventual finality of CB’s condition, is what your generosity will help fund.
Any donation is a blessing to us!! Thank you and God Bless,
Micah, Rebecca, and Family
DonationsSee top donations
- Annette Karnes
- John Merrifield
- Link Family
- Ronald Hewitt
- Matt Uhart
#1 fundraising platform
More people start fundraisers on GoFundMe than on any other platform. Learn more
Expert advice, 24/7
Contact us with your questions and we’ll answer, day or night. Learn more