Ollie's CP is due to congenital cytomegalovirus infection (CMV), which has also left him profoundly deaf in his left ear.
Ollie lives in Canberra, and has to make frequent trips to Sydney for treatment and appointments. Botulinum toxin (Botox) injections into his legs and hips reduce his spasticity and assist him to mobilise with a walker, but this intervention wears off over time, and the spasticity, muscle cramps, accompanying pain and reduced mobility return.
Consequently, Ollie is unable do to a lot of things that most children take for granted, like walking, running, jumping, sitting on the floor, and kicking a ball.
An amazing neurosurgical procedure called Selective Dorsal Rhizotomy (SDR) has been shown to permanently reduce spasticity in children with CP. This means children can expect improvements in sitting, balance, and mobility. It is also likely to eliminate or greatly reduce his need for painful and invasive orthopaedic procedures throughout his life.
For Ollie, this operation in addition to intense post-operative surgery may mean he can walk independently without his walker, and run around and ride a bicycle with his older brother and sister.
This amazing and life changing surgery is performed at the St Louis Children's Hospital in Missouri (USA) by Dr TS Park and his team. Dr Park has performed this procedure over 2800 times in children and adults with CP.
To get there, we need to raise $70,000. Ollie is a very happy, motivated and determined little man, and as his parents, we want to give him this opportunity so that he can realise his potential, and live the amazing life he deserves.
If you would like to help Ollie to live his life without pain, multiple painful orthopaedic procedures, and have the ability to live his life like other children, we would be extremely grateful.
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- Kristopher Evans
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