Hi everyone, 


I am the last person to ever want to ask for help. Unfortunately at this time in my life I must ask because I need help. On the night of January 6, 2021, I experienced my first seizure. I have never had signs or indications that I have epilepsy or anything else that might trigger seizures. This truly came out of no where. 


I had no idea that my entire life was going to change on that frightful day, but it has.  I went to the hospital that night. They examined me and felt it was safe for me to go home.  Unfortunately shortly after going home I experienced several more seizures. We called the doctor and they told me to return to the ER. After 14 hours in the ER and many tests including an MRI, CT scan, lab work, etc they admitted me into the hospital. While in the hospital I suffered well over 35 seizures. The good news is that all of my tests came back normal. The bad news is we still don’t know what they are or why these are happening. 


While we do not have a definitive answer just yet the neurology team believes that I am experiencing PNES also known as pseudo non epileptic seizures. I can have up to 25 of these seizures a day. These seizures have taken a toll on my body, both emotionally and physically. I am unable to walk without assistance, I can no longer drive because they have said it’s not safe to operate heavy machinery, I’m scared to sleep for fear of what might happen while sleeping, my speech has begin to slow down, I'm experiencing memory lose, I can no longer work, I can’t even shower alone, and I need around the clock care.


My partner, Kyra, is my full time caregiver because I have to be to be monitored 24/7 to ensure that I still have an airway while seizing, don't choke, nor fall and further harm myself  (because the seizures happen sporadically). As a result of needing to care for me that means Kyra is now unable to work, which means this leaves us without income. We have rent and other bills that must be paid, including taking care of our dogs. Our families are helping us the best they can, but we are uncertain how long this will go on for. 


This money will go fully towards paying for our rent, living expenses, bills, and third party treatments not covered by my medical plan. 


Anything you are able to donate or even just sharing truly means the world to us. The pandemic alone has been hard enough, but with this added stress of the unknown regarding my health it feels like too much to manage. Thank you for reading, for caring, and for helping if you can. 


I will post an update as we learn more.