Dylan needs help

Dear friends and family,

I am reaching out to you today with a heavy heart as my 15-year-old son Dylan is still fighting a battle against a rare disease. In October 2022, we found more tumors. Two on his skull, and one on his sternum. The biopsy came back, with a rare disease that is an autoimmune disorder. He has Langerhans Cell Histiocytosis, multi-site. Langerhans cell histiocytosis (LCH) is a rare disease that begins in LCH cells. LCH cells are a type of dendritic cell that normally helps the body fight infection. Dylan now needs to undergo chemotherapy, and other treatments, to fight recurring lesions.

Dylan was diagnosed with a cancerous brain tumor, a Papillary tumor of the pineal region, at age 7 and underwent a risky brain surgery to remove it. After 6 weeks of radiation, it returned twice, and we treated it with gamma knife radiation. The papillary tumor has been in remission for 5 years.

The road ahead will be long and hard, but I am determined to do everything in my power to help Dylan beat this disorder. We are seeing several specialists, that are all out-of-pocket cash pay. The costs of Dylan’s other medical treatments are substantial, and I am reaching out to you to ask for your help.

Dylan is a brave and determined young boy, who never ceases to amaze me with his strength and courage. He is always smiling and never loses hope, even in the face of this devastating disease. His love for God inspires me every day and I am so grateful to have him in my life.

Any amount you can donate, no matter how small, will go a long way in helping me cover the cost of Dylan's medical treatments and care. Every little bit helps and will bring me one step closer to helping Dylan beat this rare disease.

I cannot thank you enough for your support and for helping me in this fight. I am forever grateful for your generosity and for being a part of Dylan's journey.

With gratitude,

Heidi Harrison