- M
Hi, my name is Amira and I’m fundraising on behalf of my chosen nephew, my best friend's brave and resilient little 3-year-old boy, Knox.
Knox was born with a rare congenital condition called femur-fibula-ulna syndrome, which affects the bones in his legs and causes limb differences.
Knox has already defied so many odds and pushed through pain and doubt, learning to walk on time after hearing he may never. However, as he’s grown, his legs have begun pulling outward, forcing him to walk on the inside of his feet. Over the last couple years, this has only gotten worse - progressing into painful toe-walking and increasing difficulty getting around.
To give Knox the best chance at a strong and mobile future, his medical team has scheduled a major surgery called a bilateral distal tibial deformity correction, along with tendon lengthening. In simpler terms: his doctors will carefully realign both lower legs and adjust the tight tendons so his feet can point in the right direction - helping him stand and walk safely again, and hopefully, without pain.
This is a big surgery for a little guy.
And the recovery is long:
• 4 weeks in a full spica cast (a cast from chest to ankle restricting nearly all movement)
• Followed by 4 more weeks in double leg casts
• At least 2 months total of very limited mobility
But here’s where the community comes in…
While surgery is covered, his essential recovery needs are not, including:
A medical-safe wagon so he can be transported when he can’t walk or sit upright
A supportive bean bag chair designed for kids in spica and leg casts
Extra costs from parents missing work to care for him
Hospital travel, food, parking, and follow-up visits
These items aren’t “nice extras.” They are doctor-recommended necessities to help Knox heal safely, comfortably, and with dignity.
Knox is strong, silly, and full of life - he deserves a healing journey that lets him feel like a kid, not just a patient.
If you are able, any amount truly helps lighten the load on his parents so they can focus on what matters most:
being by Knox’s side through every step of this recovery.
It's hard to find the words when you need a little extra support so I took it upon myself to seek it out for this deserving family. The surgery is less than 2 weeks away, and they've only just found out about these extra costs during already trying times and in the midst of the holiday season.
If you can’t donate, sharing this link is just as appreciated.
Thank you for being part of Team Knox and helping him move toward a future with less pain and more play




