Daniel is 3 years old happy healthy smart kid. Since he was one year and half the symptoms started to show but got worser all of sudden 2 months ago his left eye crossed inside. The Pediatric ophthalmologist refereed us to do MRI for his brain and they found Daniel had Chiari malformation tape 1 which means Daniel is suffering from central breathing stops during the night,vomiting, headaches, curvature of the spine, weakness, difficulty swallowing,allergies.
Daniel had brain surgery last week the neurosurgeon took off a lot of the pressure on the cerebellum and brain stem that affected functions controlled by these areas and block the flow of cerebrospinal fluid (CSF)—the clear liquid that surrounds and cushions the brain and spinal cord.
Daniel pressure was until C3 in the spine. Now Daniel has long way of treatments MRI brain every 3 months, sleep study every 3 months
Monitor him from now on because of the high risk of breathing stops during the night. Follow up appointments with neurosurgeon.
And keep him safe from infections that might couse complications.
Daniel has high fever the last few days he is still in the hospital going through tests every day make sure he isn’t infected. Every penny will help, thank you wish health to everybody.
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