Carwyn - An Extraordinary 11-Year-Old Who Needs Our Help

Carwyn lights hearts with his infectious smile and boundless love for Queen, sports cars, animals and football. But this remarkable boy is facing an unimaginable battle against Mohr-Tranebjærg Syndrome (MTS) - a cruel, ultra-rare life limiting condition that's rapidly stealing away abilities.

Carwyn's particularly rapid form of MTS has taken his hearing, his speech and his ability to eat. His fine motor functions are declining and he is now learning to manage pain at 11 years old. It will progressively rob Carwyn of his sight and cognitive abilities. Time is precious, and every moment matters as we race to get him suitable equipment, give him experiences and memories, all while he can still fully enjoy them.

Your kindness can make a real difference:

- Communication tools to help Carwyn stay connected with us

- Personal assistance hours to provide the specialised respite care he needs

- Accessible music equipment so he can still experience the music he loves

- Equipment for feeding, swallowing and mobility to maintain his dignity and comfort

- Life-changing adventures and experiences - seeing new places, meeting his heroes, creating precious memories while his vision and cognition remains

- Family therapies to support Carwyn and his family

Carwyn's courage and determination inspires everyone who meets him. We are hugely lucky to have him in our lives. He brings laughter and love, and most incredibly, at 11 years old, he teaches us all about what really matters in life and the strength it can take every day to just live.

Every contribution, no matter the size, brings hope to a family fighting against time.

Thank you