Amazing Grace...
Grace Caruso is a 6 month old baby girl who was recently diagnosed with a rare mitochondrial disease called Leigh’s Syndrome. Leigh’s Syndrome is a progressive neurological-metabolic disorder, which affects the brain, muscles, heart, and immune system. Leigh’s Syndrome also impacts physical strength, motor skills, speech, feeding, and vision. Unfortunately, the prognosis is poor and there is no cure for this rare and debilitating illness. Despite the lack of curative treatment available, Grace and her parents, Scott and Rachel (Beckwith) Caruso, are working with a team of specialists to help manage her illness as much as possible.

So, why do we need your help? The road ahead for Grace, Rachel, and Scott will be long, difficult, and costly. To help Grace cope with the impact of Leigh’s Syndrome, and hopefully slow the progression of her symptoms, she requires numerous specialized medications and supplements, along with intensive therapies, frequent lab work, and a large team of specialists, which are not consistently covered by insurance. The family is currently supporting Grace’s needs on a reduced income, as her mother, Rachel, left her teaching career to care for Grace full time at home.  We are looking to join together to help support Grace’s current and ongoing medical care needs.

 Grace is an adorable, fun, and loving baby with an infectious smile and giggle. She has shown such bravery and resiliency in her short life already. We hope to help give Grace as much comfort and happiness as possible, and help prevent her illness from affecting her quality of life as much as we can.  Any help you can offer, whether in monetary donation, thoughts, or prayers, is greatly appreciated. Please help us to help Grace and raise awareness for mitochondrial disease!