Carsyn's Medical Expenses

Carsyn is 12 years old and was diagnosed with Hydranencephaly (a lot of his brain didnt develop), hydrocephalus, cerebral palsy, GERD,and a seizure disorder. He has a G-tube and a shunt and sees a GI, neurology, neurosurgeon, and soon to be endocrinologist to follow up with his conditions. Carsyn is pretty medically complex and was not supposed to live to be 1. We drive back and forth to Syracuse, Rochester (we go to strong memorial for the specialists there) and buffalo(dent neurology) frequently for doctors appointments and spend up to 4 hours in a van one way. We recently got stuck with a van payment we never should have had as his benefit money was in the hands of someone other than us and it was not used wisely, sticking us with the leftover payments and thinning out our already tight budget at home. Carsyn was recently hospitalized and we came pretty close to losing him. he has a long journey ahead of him for recovery and I can only work so much while he does. any help is appreciated. Thank you to anyone that shares this or donated. It truly means a lot to us.