
Support Kari's Myeloma Journey: A Community of Care
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$60,331 raised of $110K
363 donations
A New Chapter
Dear Beloved Community,
This page tells the story of two miracles.
I started this GoFundMe in April 2025, surrounded by a Council of Care of loved ones. I was on the precipice of a rare form of blood and bone cancer called myeloma, with a limited number of years to live.
Myeloma is a terrifying disease — a rare cancer that disintegrates bones from the inside. Approximately 20,000–30,000 people in this country are living with it.
Twenty people nationwide were accepted into a groundbreaking CAR-T clinical trial. I was number 17.
Through the support of this community, I received this life-saving experimental treatment and am now myeloma-free.
So, we have a two-fold miracle.
First, the myeloma is gone. As of my last check-up in July 2026, I was still myeloma-free. How is that even possible?
Second, through all of it — the preparation, the treatment, and the recovery — I have been held financially by this community. You have paid my rent. You have paid my medical bills. You have kept me fed, safe, and on the road to recovery.
Your generosity literally saved my life.
Today I'm asking for something different: help me rebuild the life you helped save.
When I started this campaign, I thought recovery would take about six months.
Instead, I've learned that recovery has its own timeline. I'm on par with everyone else in the clinical trial. Our immune systems are responding the same as each other but differently than other trials.
While my medical team continues to be encouraged by my progress, they've also been clear that returning to full-time work too quickly risks setbacks. The path forward is steady, gradual growth.
The treatment worked.
The work of rebuilding a life is now underway.
Where things stand financially:
Between April 2025 and March 2026, this community raised about $54,000 — money that covered the bulk of my living expenses, medical costs, and two cross-country relocations for treatment. That number still brings me to tears.
For this next year, while my body continues healing and I slowly rebuild toward full-time work, I need to raise about that much again — roughly $4,500 a month, covering both living ($3500/mo) and ongoing medical costs ($1000/mo).
Since June, generous monthly donors — 9 of you on GoFundMe, plus offline support from my mom and my partner Alexandra — have committed $1,347 a month. If that holds for the year, it covers over $16,000 of what's needed. Add a couple of confirmed one-time gifts, and we're about $19,000 of the way there.
That leaves about $35,000 still to go.
If you're able to help close that gap, it would make a real difference in protecting my body and recovery.
What Your Gift Supports
-$35/month — immunotherapy co-pay
-$50/month — utilities
-$75/month — cell phone
-$200/month — transportation
-$500/month — half of my monthly medical expenses
-$1,200/month — rent
Every gift, no matter the amount, becomes part of the foundation that allows me to keep healing while gradually returning to work.
Ways you can help:
1. A one-time gift, of any size — this is the most direct way to help close the gap today.
2. Ongoing monthly support, if that fits your life — even $10 or $25 a month adds up.
3. Sharing this with someone who might connect with my story.
One passage from Shantideva's Way of the Bodhisattva has stayed with me throughout this journey:
"For those who wish to cross the water, may I be a boat, a raft, a bridge."
You have been exactly that for me.
Thank you for everything you've done, and for continuing to be with me.
With so much love and gratitude,
Kishin (Kari)
The full story of this journey, including the original campaign and treatment plan, continues below.
April 2025
Dear Beloved Community,
Two years ago, my life changed when I was diagnosed with high-risk smoldering myeloma—a condition that, if left untreated, almost always progresses into incurable multiple myeloma, a rare form of cancer in the plasma cells in the bones. I now face periods of disability, an uncertain prognosis, and a narrowing window of time for early intervention. My heart feels both tender and full as I write this letter to ask for your support.
Fundraising Goal: $100,000 for Treatment and Recovery
This diagnosis has become a catalyst for transformation—a threshold moment that invites me to soften, to surrender self-reliance, and to receive the support of community. I’ve been accepted into a groundbreaking clinical trial at the Dana-Farber Cancer Institute that offers real hope of stopping the disease from progressing and creating a long period of remission. I’m reaching out to ask for your support to access this treatment that could significantly extend my life and protect my health.
The Clinical Trial: A Path to Healing
Under the care of Irene Ghobrial, MD, a leading specialist in early myeloma intervention, I’ve been accepted into the CAR-PRISM clinical trial. The treatment follows carefully planned phases:
- April–May 2025: Medical workups and collection of T-cells and stem cells to create a personalized CAR-T therapy
- July–August 2025: Active treatment phase—includes hospitalization, chemotherapy, and 24/7 monitored care
- September 2025–February 2026: Full recovery and immune system regeneration
Because this treatment clears out all plasma cells—including healthy ones—I will be unable to work for up to six months as my immune system rebuilds.
How Your Support Creates Healing
Your contributions will provide necessary funding during this time of intensive treatment and recovery. Gaining access to this clinical trial requires relocating to Massachusetts. As someone self-employed and without a partner's income to rely on, I cannot meet this moment alone. Your support bridges the gap created by what insurance won’t cover.
- $65,000 covers immediate needs: medical expenses, Boston relocation, caregiver support, food, and essential living costs
- $35,000 creates longer-term stability: housing during recovery, immune system support, and reintegration back into life and work
Even small contributions make a difference. Every gift—whether $10 or $10,000—is part of the web of care that holds me through this journey. Your generosity creates real, tangible support:
- $10 offers a warm meal, a pharmacy run, or a cup of tea
- $50 provides a day of nourishing, allergy-friendly meals
- $250 supports a full day of safe, healing housing and caregiver presence
- $1,000 covers several days of care during the most intensive phase
- $3,500 offers a full month of living costs—rent, food, transportation, and peace of mind
- $10,000 creates a foundation for healing and return to service
Each gift is a thread in the wider fabric of care—making it possible for me to walk this path with steadiness, dignity, and support.
An Invitation to Community Healing
This invitation reaches across many chapters of my life. Whether we are close now, have been in the past, or you’ve found your way here through mutual friends or my story—thank you. Throughout this journey, a circle of beloved friends and family has gathered around me in a council of care, transforming my life and heart. This campaign is an invitation to join that circle—a living example of the community-based healing I’ve always believed in.
Ways to Support
- Share this campaign
- Contribute financially if you’re able
- Follow updates on Instagram @karikishin or Facebook
- Hold this healing in your heart and prayers
My council of care will provide weekly updates during active treatment and monthly updates throughout recovery.
May this journey affirm our shared humanity and the power of collective care. May any support you are able to offer ripple outward into wider healing. And may those ripples carry my lifelong prayer out—including back to you:
May all beings, everywhere, experience wellbeing, love, and ease.
With deep gratitude,
Kari Kishin Lindahl Hart
My Journey: Intersections of Identity, Spiritual Practice, and Healing
Throughout my life, I’ve been called into intimate understanding—personally and professionally—of how our identities and histories shape our health.
I’m queer, genderfluid, transgender, and female-bodied. Like many in my communities, I carry experiences of trauma. I also live with severe allergies and asthma, caring for a chronically vulnerable immune system. These experiences have guided me to a deeply courageous and steady heart—a place where I can meet life’s challenges directly, using them as fuel for transformation and healing.
These experiences also connect me deeply to my communities. Research shows that the impacts of both childhood trauma and systemic inequities live in our bodies, shaping our immune systems and health outcomes. Within my communities, many of us carry these stories in our bones—the weight of navigating systems that fail to see us fully and the wisdom we gain from advocating for our own wellbeing. I feel this now more than ever, with the current political violence and loss of rights facing us.
Professionally, these experiences are part of my devotion to a life of service. Prior to the pandemic, I worked as a licensed clinical social worker and mindfulness teacher, offering mindfulness-based, equity-focused, multicultural therapy with rural and historically underserved populations. During the pandemic, I focused my work on supporting healthcare workers facing unprecedented challenges caring for COVID patients. Through facing the depths of human suffering together, the patients, providers, and administrators I've served have shaped and inspired me with their remarkable resilience.
These experiences have been profound teachers for me. For more than twenty years, I have practiced rigorously in both the Buddhist and Shamanic traditions. The myeloma diagnosis has been a life-changing call to listen more closely and surrender to what is. I was fortunate to receive scholarships for two extended retreats, which gave me the space to process the reality of my diagnosis as part of my spiritual practice. One central theme that emerged during this time is what Thich Nhat Hanh calls 'interbeing'—the web of interconnection and interdependence that supports all life. This understanding deepened my sense of interdependence, guiding me to let go of self-reliance and rest more fully in the embrace of community, the natural world, and the sacred. What started as a medical diagnosis has become a practice of receiving life's preciousness with new depth.
The Path Forward
In April and May, I’ll complete screenings and have my cells collected to begin the process of personalized CAR-T therapy. In July, I’ll undergo the active treatment phase—three days of outpatient chemotherapy, followed by hospitalization and 24/7 monitored care. After that, I’ll need 6–8 weeks of continued support for daily needs as my immune system rebuilds. Full recovery can take up to six months.
My insurance covers some of the medical costs, but not housing, travel, food, or the presence of a caregiver—nor does it account for being unable to work for half a year. That’s what this campaign makes possible.
Your support provides:
- Housing near Dana-Farber during treatment
- Food, transportation, and caregiver presence during and after hospitalization
- Financial stability during recovery
- Peace of mind so I can focus completely on healing
A Council of Care
In this journey, I've been blessed to be held by love that flows from many sources. A circle of beloved friends and family have gathered around me in a council of care, moving with remarkable, intuitive grace, each person sensing when to draw near. I feel so grateful for: the devoted presence of my new partner Alexandra, the enduring support of my former spouse Ryushin, the foundational love of my mom Bobbi, the impossible generosity of my dharma sibling Noah, the organizational prowess and fierce heart of my cherished friend Emily, the unwavering care of my lifelong friend Kelly, the soft, shining determination of my dear friend Sam, and the courageous steadiness of my dharma sibling Stephan. You'll see them as the team on this page. Receiving their care has changed my life and heart. I hope this web of love and care touches your heart as you read this. This campaign is an invitation to join us in this responsive circle of care, a place I hope is not just a support for me, but a collective experience of community wellbeing.
Thank You
Thank you for witnessing my story here. I don’t have words for the gratitude I already feel. I’m honored for you to be a part of my journey, in whatever way feels right for you. I invite you to stay connected with me. Any way that is authentic and within capacity for you to support my journey, I receive with humble gratitude.
Co-organizers7
alexandra ballensweig
Co-organizer
Emily Bowling
Co-organizer
Kelly Rodgers
Co-organizer
Noah James
Co-organizer
