I am asking first and foremost that you please keep Carlisle in your healing prayers and all of us in your prayers of strength and understanding as we continue to have many appointments to try and get him better. He had another appointment the with head of Pediatric Neurosurgury at John Hopkins Children’s Hospital in Tampa to see what we can do to treat his condition. We were informed that he has to have surgery on his brain to treat the Chiari Malformation. Hopefully this will take some of the pressure off of his brain and possibly stop the seizures. There is no guarantee that the seizures will stop, but the Chiari will be treated. Secondly, I am humbly asking for any sort of donation you would be willing to extend to help with the day to day expenses that come along with missed work, doctor’s appointments, special diet, medications, etc. Candace is constantly having to take time off or miss work due to the school calling to inform us that he has had another seizure and they can’t get him to bounce back to his normal self. This happened on the first week of school and was the longest seizure of them all and he spent the rest of the entire day and night in the hospital. His surgery is scheduled for August 8th. She will need to be in Tampa for possibly a week to be with Carlisle and depending on what they need to do with him his care afterward may involve her having to take some more time off.
Carlisle is so full of love and joy. He is his mommy’s first true love, his brother’s best friend, and a huge part of my heart. He brings a wonderful light to anyone that gets to be loved by him and loves back with all his heart. He has an energy that lights up a room and keeps all around him going.
Thank you all for taking the time to read our little story and again we appreciate you and all your loving thoughts and prayers. <3
- Richard Lett
- Nicky Olivo Segura
- Lucy Barnes
- Norma and Joe Bailey
- William Connell
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