Caring for Kohlton James ❤️

Kohlton Neal James is 10 years old. He’s a Rockstar. A Fighter. A Superhero. A Northwest Florida Legend. He has been battling a rare form of cancer, Langerhans Cell Histiocytosis (LCH), since he was 28 months old. His parents, Kara & Tommy James, have remained incredibly strong through all these years of medical, financial, and emotional difficulty. After the news of the cancer coming back, they could really use some assistance this time around. 

Kohlton is undergoing his 7th protocol of chemotherapy treatment. With another elementary aged child, a toddler, and an infant at home, Kara and Tommy have some major financial hurdles ahead of them. I believe we,  their family, friends, prayer warriors, and even strangers, can help alleviate some of the financial burden so they can mentally focus on what’s best for their family. Monthly trips to Houston for Kohlton’s treatments and follow-ups, insurance co-pays, tests that insurance won’t cover at all, extra hours for babysitters, gas, hotels, and countless other expenses...the numbers quickly become a daunting strain. 

Please, please keep this family in your prayers! You can never pray too hard or too often for Kohlton and his family! God Bless! 

(Jenna VanGrowski Giannini, Cousin of Tommy James -  Kohlton’s Father )

https://www.facebook.com/SuperKohltonNeal/ 




Kara’s Facebook Post on Sunday, September 22, 2019...

For all my friends and family, I’m sorry most of you are finding out this way. To be honest, Tommy and I don’t have the emotional strength to go through telling and the answering of all the questions over and over with everyone. This is just the easiest way.
I am mad. I am sad. I am heartbroken. I am pissed. I am upset. I am furious. I am emotionally drained.

Thursday we received a call from the oncologist in Texas. The radiologist found something. He found the lesions in Kohlton’s cerebellum have changed, but also the cancer is in a new area of the brain, called the pons. He said this area is not something you can sit and watch. That Kohlton would need to start chemotherapy asap. He had already talked to the oncologist here and had everything in the works.

Last night we told Kohlton. He cried, we cried, it was awful. He even said “I wish I didn’t have to get cancer again”. That will always stay in my head. I can not shake it. Every time I hear it in my head I start crying.

Please pray for our sweet boy. Please pray for his brothers who are heartbroken too. Please pray for Tommy and I. We all need prayers! We will find out more tomorrow and will update more then. Please understand I’m super mad and will probably go off if anyone tells me, It’s all God’s plan, or God knew this would happen. I am trying to warn you all. I still believe God will cure Kohlton, but I’m mad he has to go through this again. Thank you everyone. Please keep praying!

Kara James