#ParkerStrong #CrouzonsWarrior

As some of you may know, this amazing little boy of ours was born with a rare genetic disorder known as Crouzon's Syndrome. It occurs in about 1 in 50,000 to 1 in 100,000 births. Crouzon's syndrome is a rare genetic disorder and is a form of craniosynostosis, a condition in which there is premature fusion of the joints (sutures) between certain bones of the skull. We have been through multiple cranial surgeries starting at 6 months old. Now it is time for the next step. Parker will undergo a Monobloc surgery on May 20th. This procedure will involve simultaneous advancement of the forehead, eyelids, and midface as a single unit. This surgery is meant to improve protection of the eyes as well as open his airway as he struggles with his breathing, especially at night. This is a minimum of a 6-hour surgery, and at least a week's stay in the hospital followed by recovery at home. We are hopeful for a positive outcome and improved way of life.

With all this being said, you can imagine that between travel, hotel stay, food, and time that will be missed from work for not only the time in the hospital but time needed to be home to care for our strong boy, costs add up and funds are tight. So we will be starting a fund. If your heart guides you to donate, we would greatly appreciate every cent; however, we know that times are tough for everyone and that everyone has their own battles they're fighting. So we are also asking for prayers for our boy to receive the surgery well, recover quickly, and the guidance of the doctors for steady hands and calm hearts. Again, we love and appreciate each and every one of you and the support you have continued to show our boy along this journey.

Thank you all

RJ & Kayla Barton