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Cancer journey and expanding the Sullivans

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I have set up this page to help one of my best friends as she goes thru an incredibly unexpected new journey in life.  I will post in her own words below just what this journey is and if you feel lead to give: thank you! If you cannot, I know they covet your prayers for them during this time! Thank you! 

in Megan’s words:

Thank you so much for those who have been praying for me over the last few months when I have asked.
I’m sharing my story mainly for continued prayers and for people to stand up and advocate for themselves!
Praying for God to give me and my husband strength, guidance, comfort and patience though this time as we are navigating everything new.

No one wants to talks about all this. It’s raw and painful. I started taking action on my fertility health after marriage because we wanted children. Started having issues and telling my OB something isn’t right. She didn’t want to listen so on to the next. Months ago, I started having issues with major pain and coming close to passing out several times, which had me going to multiple doctors. All blood work is normal so I was wondering what’s going on. We had been trying to get pregnant for almost 2 years with 2 early losses back to back, a ruptured ovarian cyst, and 2 fibroids (5cm and 1.5cm), so we thought, 3 OBs, a fertility acupuncturist and a fertility specialist, I finally got heard. (Advocate for yourselves ladies! Always!!! Don’t ever Stop seeking things out if you think something is wrong.)

My OB and OB Oncologist said what we thought were fibroids, pathology said looks like Cancer. They said it could be wrong because it’s vary rare for a fibroid to be cancerous. So they sent it to a specialist at UNC. The first thing I asked was can I still get pregnant and have a baby. That was my one and only concern. She said honestly I don’t know yet we need more info and a MRI. Everything I read about on this cancer was a full hysterectomy.

I’m devastated, heartbroken, I feel like the pain and sadness is unbearable at times. I’m mad it’s not somewhere else in/on my body, I’m angry that OBs didn’t listen to me when I told them and knew that there was something wrong. They kept giving me excuses on why I’m having the issues I had. I’m scared, and I’m so very sad. I’m sad that I might never get to have, or carry a child. The one thing I am not, is angry at God.
This cancer doesn’t react to chemo or radiation. I have to have surgery. It’s not just maybe the cancer. It’s maybe the cancer and maybe not ever carrying or having a baby, on top of a full hysterectomy and being on hormones the rest of my life. I’m crushed with the waiting and the unknown.

Well I started praying of course and having all my prayer warriors start praying for something good and not the worst possible outcome.

It has been confirmed through many tests, MRI’s, appts, and a board of other doctors that I do have cancer. Tears flowed and my heart sank.
It’s low grade endometrial stromal sarcoma. It’s very rare 6 in 1 million women get it and its usually diagnosed at the age of 51. It’s not typically found in someone as young as me.
Many of you know I was on a journey to start a family. Well, this has complicated things as the 5cm tumor must be removed. The doctors are moving very fast. I’ll have an appointment set up soon with an infertility specialist to talk about preserving my eggs and I will know more after.
I will have to have major surgery with a c-section incision. The doctors are hopeful they can save most of my uterus and tubes while removing the tumor. We are hoping to start the IVF journey to have a child to speed things along because either way I will eventually need a full hysterectomy. If she can’t get the tumor all out unfortunately, I must have a full hysterectomy then. There are lots of unexpected medical and financial decisions to be made because of the cancer and many many days ahead of unknowns.

Prayers have been answered already!Thank you Father! I’m not going to surgery this week. I have options! I know God is in control and he’s got me either way this goes! This is no shock to Him. I am praising God there is hope and a chance that my eggs can be retrieved. Praising God that the cancer hasn’t spread anywhere else and it’s contained. Praying the tumor shrinks between now and surgery to make it easier for her to remove it all.

God tells us to ask for things we want and he will give us the desires of our heart. This has been a huge desire of my heart to carry and have a baby.

Delight yourself in the LORD; And He will give you the desires of your heart. Psalms 34:4
For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.
Jeremiah 29:11
We are asking for continued prayers still. We are so very thankful to have such a huge support system the last few months, now, and in the days ahead.

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    Organizer and beneficiary

    Rebekah Umberger
    Organizer
    Fuquay-Varina, NC
    Megan Sullivan
    Beneficiary

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