Campaign for Nico 2025

This is our 3rd campaign for Nico just in time for his 18th birthday party. Please join me again in helping Nico and Cristiana continue their challenge to create a wonderful and happy life for Nico. Trisomy 18 is Nico's very rare genetic disorder. With amazing perseverance and Cristiana's relentless global search for any and all therapies, groups, standard and non-standard treatments Nico has already beaten some incredibly challenging odds getting this far and we can all help to ensure that continues.

This year I am undertaking another Spartan Race for the occasion but this year is more special as my son Liam will join me in the effort. I have 2 challenges...can I survive and beat him..!

6yrs ago we raised about €4k to send Nico to a brain therapy center in Florida which significantly improved his cognitive ability and attend normal school. 4yrs ago we surpassed our goals to raise €5k in support of specialized surgeries Nico required in Switzerland AND to buy him a special 3 wheel bicycle.

This year I hope we can go further with your help. Nico has ongoing rehab activities like cognitive training hyperbaric therapy and physiotherapy to counteract scoliosis and possibly prevent additional future surgeries to his feet. He has music therapy and other workshops to improve his level of autonomy. Recently, we found out he suffers from leaky gut and nutritional malabsorption. As a result, Nico is deficient in iron, fatty acids and important nutrients. These tests also revealed high level of heavy metals intoxication which confirms previous diagnosis of genetic mutations preventing effective detox. Our efforts will help Cristiana who is now working with a Specialist in Spain for regenerative medicine which we hope can compensate these nutritional deficiencies and help his body detox and prevent or retard future diseases.

Please join and give what you can, in support of Liam and my efforts and in time for Nico's 18th Birthday celebration 24-May. Despite his challenges, Nico is happy as ever and very excited to have at his birthday a cover band for his favourite Italian hard rock band....Litfiba....!

We appreciate your support.