Cameron's Crewsade II Fundraiser

My nephew, Cameron Schwartzberg, was diagnosed with a rare form of Muscular Dystrophy called Congenital Muscular Dystrophy when he was 18 months old. Cameron’s parents had no idea what this was or what it would mean for their son. With the help of some great doctors they soon realized what they were facing and that their lives would be forever changed. Shortly aer Cameron’s 2nd birthday he stopped walking. Cameron saw multiple doctors only to hear that he would never walk again and may never even stand on his own again. Cameron’s parents put in orders for a power wheelchair, had a stander built just for him and were ready to sell their house and buy something more suited for a wheelchair.

In December of 2006 they received a call from one of the doctors at Rush letting them know that he found a surgeon that was willing to try a risky but potentially rewarding surgery on Cameron’s hips. The family immediately went to see him and weighed all of the benefits and risks. In January of 2007 Cameron underwent a long drawn out surgery, called a bilateral hip release, followed by 4 weeks of rehabilitation at Hope Children’s Hospital.

Much to Cameron’s surprise, as well as every doctor he saw, in late February 2007 Cameron walked again! This lasted for a few years and in 2012 Cameron started to grow and his body could not keep up, he is now a full-time wheelchair user.

In 2013 Cameron underwent 2 different surgeries, 3 weeks of inpatient rehabilitation and 10 weeks of day rehabilitation.

This past year has once again proved to be a rough one, on May 11th he endured a 9 hour surgery for a full spinal fusion. The surgery went great but recovery was a different story. His body did not handle the trauma well and ended up in the hospital much longer than expected. To this day he is still in the procces of recovery and is a long ways from getting back to himself. The level of care and assistance that he needs at home and will need at school has dramatically increased and we are unsure if he will get his independence back. He has gone from only using a manual wheelchair to depending on the help different pieces of medical equipment/devices everyday just to get around and maintain his health.

Money raised will help the family pay for and maintain the equipment, cover medical expenses from the surgeries and rehabilitation, assist with the cost of continued physical therapy and hydrotherapy (Cam’s favorite) as well as help with the cost of some modifications.

  • Anne Ingman 
    • $10 
    • 47 mos
  • Wendi Sloane 
    • $50 
    • 47 mos
  • Julie Davis-Allen 
    • $40 
    • 47 mos
  • Brandy's Naulls 
    • $25 
    • 47 mos
  • Samantha Schumacher  
    • $100 
    • 47 mos
See all

Organizer and beneficiary

Rebecca Hansen Groskreutz 
Lisle, IL
Elisha Schwartzberg 
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